Full DataSet (Wide): 4913 sites

THE MERCK MANUAL, Sec. 1, Ch. 3, Vitamin Deficiency, Dependency, And Toxicity : Vitamin D Deficiency and Dependency

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As the human body is able to synthesize vitamin D from exposure to sunlight, deficiencies in this vitamin tend to occur most in dark-skinned individuals (who require more time in the sun to produce adequate amounts of the vitamin) and those living in regions of the world that get low levels of solar exposure. This is spelled out in far more precise and technical terms on this page, which includes an excerpt from the professional edition of the Merck Manual. Details on rickets (which is the disease associated with this nutritional deficiency) are supplied, along with extensive information on signs and symptoms, laboratory findings, diagnostic procedures, and treatment. Brief summaries of the two types of hereditary vitamin D deficiency conditions are also provided.

MD S

Prevention

Web

6/5/2002

THE MERCK MANUAL, Sec. 1, Ch. 3, Vitamin Deficiency, Dependency, And Toxicity : Vitamin C Deficiency

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Vitamin C, with its many important bodily functions (chief among them its role in the production of collagen), must be consumed by human beings regularly for survival. This entry from the professional edition of the Merck Manual describes scurvy, the name for the disease caused by vitamin C deficiency, outlining its signs and symptoms and its straightforward course of treatment (the administration of vitamin C supplements). Page also briefly summarizes the possible consequences of excess vitamin C consumption, which, though not serious, may cause diarrhea, excess iron load, and urinary calculi.

MD S

Prevention

Web

6/5/2002

THE MERCK MANUAL, Sec. 1, Ch. 3, Vitamin Deficiency, Dependency, And Toxicity : Vitamin B6 Deficiency and Dependency

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Most foods contain vitamin B6, notes this excerpt from the profession edition of the Merck Manual, and so serious deficiencies in the vitamin are rather rare. Still, they are possible, and this page explains what they can cause: dermatosis, glossitis, cheilosis, peripheral neuropathy, and lymphopenia. Details on the signs and symptoms of dependency are also available. Prose is technical, and page is fairly thorough.

MD S

Prevention

Web

6/5/2002

THE MERCK MANUAL, Sec. 1, Ch. 3, Vitamin Deficiency, Dependency, And Toxicity : Vitamin A Toxicity

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Though deficiency in vitamin A consumption is a far more serious threat, it is still possible to consume doses of the vitamin that cause toxicity. These doses usually must be rather massive to cause toxicity, which is manifested by a yellowing of the skin--especially of the palms and the soles of the feet--known as carotenosis. This page, which is an excerpt from the professional edition of the Merck Manual, explains this phenomenon and offers tips on diagnosis and treatment, which is straightforward and very effective.

MD S

Prevention

Web

6/5/2002

Viamin A Deficiency

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A group of Swedish students has put together this project on vitamin A deficiency. Compact site discusses the history of vitamin A, its importance in the diet, food sources, signs and symptoms of deficiency, and treatment information. There is also information on the prevalence of vitamin A available, along with a brief summary of its precise metabolism and its relation to other diseases.

Prevention

Web

6/4/2002

THE MERCK MANUAL, Sec. 1, Ch. 3, Vitamin Deficiency, Dependency, And Toxicity : Vitamin K Deficiency

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Very technical prose describes the role of vitamin K (a generic term for several different chemicals) in the human body. The vitamin plays a role in blood coagulation, which is its most important function in the body. Page discusses the signs and symptoms of deficiency--which is usually a risk only to infants, as the vitamin is widely available in both plant and animal foods. For the rare cases in which it does occur, page offers tips on diagnosis and treatment.

MD S

Prevention

Web

6/4/2002

THE MERCK MANUAL, Sec. 1, Ch. 3, Vitamin Deficiency, Dependency, And Toxicity : Vitamin A Deficiency

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Vitamin A, also known is retinol, is available directly from animal sources and can be synthesized by the body from beta-carotene, which is found in abundance in both yellow-colored and green leafy vegetables. This excerpt from the professional edition of the Merck Manual explains all this and also covers the etiology, signs and symptoms, laboratory procedures, and treatment methods related to vitamin A deficiency. Language is written in the jargon of the medical profession.

MD S

Prevention

Web

6/4/2002

THE MERCK MANUAL, Sec. 1, Ch. 3, Vitamin Deficiency, Dependency, And Toxicity : Thiamine Deficiency and Dependency

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Learn about the effects of thiamine deficiency (including beriberi) on this page, which excerpts relevant material from the professional edition of the Merck Manual. Fairly detailed information is available on the signs of developing thiamine deficiency (including peripheral neurological changes, known as "dry beriberi"), as well as diagnostic and treatment information for the various sorts of beriberi. Thiamine dependency is summarized in one small paragraph at the end of the page.

MD S

Prevention

Web

6/4/2002

THE MERCK MANUAL, Sec. 1, Ch. 4, Mineral Deficiency And Toxicity : Selenium

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This very brief entry in the professional edition of the Merck Manual concisely describes the role of selenium in the human body. Page notes that the element appears to have some cancer-suppressing properties, but that further research is needed. Although deficiency and toxicity involving this mineral are both rare, page tersely describes what can occur under each scenario.

MD S

Prevention

Web

6/4/2002

THE MERCK MANUAL, Sec. 1, Ch. 3, Vitamin Deficiency, Dependency, And Toxicity : Riboflavin Deficiency

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Brief page describes the signs, symptoms, and causes of riboflavin deficiency in technical, scientific prose. Condition, which results from inadequate consumption of the vitamin or from alcoholism, liver problems, or chronic diarrhea, can lead to ocular lesions as well as to problems in the oral cavity (specifically angular stomatitis). Page is concise, overviewing signs, symptoms, and laboratory findings as well as the suggested course of treatment.

MD S

Prevention

Web

6/4/2002

THE MERCK MANUAL, Sec. 2, Ch. 12, Water, Electrolyte, Mineral, And Acid-Base Metabolism : Potassium metabolism

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Excerpt from the professional edition of the Merck Manual discusses the metabolism of the most abundant intracellular cation--potassium (K). Page outlines how balances are achieved both inside cells and in interstitial space and discusses the two disorders of potassium metabolism: hyperkalemia and hypokalemia. For each of these conditions, find information on cause, prevention techniques, and course of treatment. Writing is in a technical style.

MD S

Prevention

Web

6/4/2002

MEDLINEplus Medical Encyclopedia: Hyperkalemia

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This is the MEDLINEplus entry on hyperkalemia, a condition in which the body's levels of potassium are unusually high. Extensive outline covers the risks of the condition, its causes (usually originating in a kidney dysfunction), symptoms, prevention guidelines, and treatment (both acute and long-term). Page ends with a glance at potential complications and an outline of symptoms that warrant an immediate trip to the emergency room.

Prevention

Web

6/4/2002

THE MERCK MANUAL, Sec. 1, Ch. 3, Vitamin Deficiency, Dependency, And Toxicity : Pantothenic Acid Deficiency

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Pantothenic acid is widely available in an array of foods, which explains the very small amount of content provided on this page taken from the Merck Manual explaining what symptoms can be caused by a deficiency. These include malaise, abdominal discomfort, and burning feet (associated with paresthesias). Text is only two-paragraphs long.

MD S

Prevention

Web

6/3/2002

Norman Clinical Laboratory, Inc.

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Norman Clinical Laboratory, Inc., is a company that provides testing of urine samples to determine the existence of vitamin B12 deficiency. The company's assays measure levels of MMA (methylmalonic acid) in order to help determine whether a B12 deficiency is to blame for dementia symptoms or whether other more troublesome causes are to blame (such as the early stages of Alzheimer's, etc.). Sidebar links to a variety of related on-site pages, which guide users through such questions as, "Who should be tested?", "What do the experts say?", and "Why is early detection important?" Testimonials are also available, as is a link that allows users to e-mail the company for more information.

MD P

Prevention
Lab

Web

6/3/2002

THE MERCK MANUAL, Sec. 1, Ch. 3, Vitamin Deficiency, Dependency, And Toxicity : Niacin Deficiency

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Niacin deficiency is the principal cause of pellagra, a condition that once afflicted legions of southerners who lived mostly on corn, which is deficient in the vitamin. Entry from the professional edition of the Merck Manual describes how deficiency occurs and what its effects are. Signs and symptoms of pellagra are outlined along with treatment suggestions. Language is technical and dense, most suited to medical professionals.

MD S

Prevention

Web

6/3/2002

THE MERCK MANUAL, Sec. 1, Ch. 4, Mineral Deficiency And Toxicity : Molybdenum

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Excerpt from the professional edition of the Merck Manual explains the role of the transitional element molybdenum in the human body. Technical document briefly discusses the occurrences of molybdenum deficiency and toxicity, which are rare, and also describes the recommended daily intake according to the Food and Nutrition Board of the NAS/NRC. Page is very concise, as this is one of the less troublesome minerals.

MD S

Prevention

Web

6/3/2002

Micronutrients & Malnutrition

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Concise page outlines micronutrient malnutrition problems as they exist around the world. Site uses basic, straightforward language and provides maps that illustrate the prevalence of deficiency problems in the various nations across the globe. Deficiencies covered include those related to vitamin A, iron, and iodine. Page is sparse but interesting as a jumping-off point to more detailed information. It was created as a student project.

Prevention

Web

6/3/2002

THE MERCK MANUAL, Sec. 1, Ch. 4, Mineral Deficiency And Toxicity : Manganese

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The online edition of the Merck Manual explains the role manganese plays in the human body. Neither manganese deficiency or toxicity is at all common; the mineral is present in abundance in whole grains, green leafy vegetables, and teas. Page explains this, notes that the mineral is essential for bone structure, and describes the absorption rate as five to ten percent. Page is quite brief, as manganese is a rather trouble-free mineral.

Prevention

Web

6/3/2002

THE MERCK MANUAL, Sec. 2, Ch. 12, Water, Electrolyte, Mineral, And Acid-Base Metabolism: Magnesium

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Technical document from the online version of the Merck Manual professional edition examines the role of magnesium in the human body. It notes that the mineral exists as the fourth most plentiful cation in the body and discusses conditions associated with improper magnesium metabolism, such as hypomagnesemia and hypermagnesemia. Indications for treating those with these conditions are offered, as are details on magnesium metabolism among healthy individuals.

MD S

Prevention

Web

6/3/2002

Magnesium: Coming of Age

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This article, first published in the "Harvard Heart Letter" in 1991, discusses the increasing body of research revealing the importance of magnesium to a healthy body. It notes that though blood levels of this mineral are low, it is found in abundance within the boundaries of the cell walls, supporting vital functions. It also observes that low blood levels of magnesium may play a role in artherosclerosis. Article is easy to read and aimed at those with little scientific background.

Prevention

Web

6/3/2002

N/N

Magnesium Update

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A nutritionist offers details on the link between magnesium deficiency and a variety of ailments--from attention-deficit disorder to fibromyalgia to Parkinson's disease. She outlines suggested dosage amounts, discusses typical absorption problems, and briefly sketches the relationship that exists among calcium, magnesium, and vitamin D. Page is quite thorough, with additional information about the author (whose name means "curly-haired") available through links at the bottom of the page.

Prevention

Web

6/3/2002

THE MERCK MANUAL, Sec. 1, Ch. 4, Mineral Deficiency and Toxicity - Iodine

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The online version of the professional edition of the Merck Manual presents this page of information on the topic of iodine--what it does, why it is necessary in the human body (for proper functioning of the thyroid), and what happens when humans consume too little or too much. Prose is technical but clear, describing how colloid goiter can result from deficiency and how toxicity is generally less of a problem, even in areas where iodine intake is high, such as Japan.

MD S

Prevention
Endocrinology

Web

5/10/2002

HealthWorld Online - Integrative Medicine - The Importance of Magnesium to Human Nutrition

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Easy-to-read article discusses the importance of the mineral magnesium to the health of the human body. It notes that magnesium is a "critical co-factor" in over 300 enzyme reactions involved in the process of human metabolism. It describes a number of common "stress symptoms" that may, in fact, be related to the condition, such as shortness of breath, insomnia, anxiety, panic attacks, menstrual disruptions, and so on. Details on the various ways of diagnosing the condition are also offered. Page's perspective emphasizes diet and supplementation as key to alleviating symptoms.

Prevention
Complementary Medicine

Web

5/10/2002

THE MERCK MANUAL, Sec. 1, Ch. 4, Mineral Deficiency and Toxicity - Copper

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Scientifically sophisticated prose describes the role of copper in the bodies in this fact file on the mineral presented by the online edition of the Merck Manual. It discusses copper metabolism briefly, then explains the conditions that can result from improper copper management, mainly Menkes syndrome (inability to keep copper in the body) and Wilson's disease (the excessive accumulation of copper in the body). Page goes into considerable depth for each condition, outlining signs and symptoms, diagnostic procedures, and recommended courses of treatment.

MD S

Gastroenterology
Prevention
Neurology

Web

5/10/2002

THE MERCK MANUAL, Sec. 1, Ch. 4, Mineral Deficiency and Toxicity - Fluorine

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Technical page from the online edition of the Merck Manual discusses the role of fluorine (commonly seen in the form of fluoride, as in fluoridated community drinking water supplies) in the body. It notes that some scientists feel that it is essential for healthy teeth and bones while others question its importance. Details on fluorosis--a weakening of teeth that results from excessive fluorine consumption--are also provided. Page is concise.

MD S

Dentistry
Prevention

Web

5/10/2002

THE MERCK MANUAL, Sec. 1, Ch. 4, Mineral Deficiency And Toxicity

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Brief entry in the online edition of the Merck Manual discusses the importance of chromium in the diet in technical, scientific terms. It references an animal study in which chromium was proved to be a necessary component in the insulin/sugar metabolism. It also describes what happens in cases of chromium deficiency (and what to do about it) and overviews the dangers of chromium toxicity (which are few when it is administered orally).

MD S

Gastroenterology
Prevention

Web

5/9/2002

THE MERCK MANUAL, Sec. 2, Ch. 12, Water, Electrolyte, Mineral, And Acid-Base Metabolism

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The online edition of the Merck Manual offers a thorough, extremely technical description of the body's calcium metabolism on this website. Text covers the various symptoms that can result from hypocalcemia and hypercalcemia, discusses how to test for the conditions, and offers general comments on calcium metabolism. Page is exhaustive, and its heavy use of jargon makes it most suited for medical professionals.

MD S

Gastroenterology
Prevention
Lab

Web

5/9/2002

THE MERCK MANUAL, Sec. 1, Ch. 3, Vitamin Deficiency, Dependency, And Toxicity

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The online edition of the Merck Manual explains vitamin deficiency, dependency, and toxicity. The vitamin is essential to the metabolism of fat and carbohydrates. Page explains how deficiencies can develop, outlines the conditions that depend on biotin supplementation, and briefly summarizes what role the vitamin plays in the human body. Language is concise and quite technical.

MD S

Prevention

Web

5/9/2002

International Eye Foundation - Vitamin A

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N/A

According to this fact file from the International Eye Foundation, xeropthalmia--the name for blindness resulting from vitamin A deficiency--causes 70% of all childhood blindness. It then goes on to describe its efforts at administering vitamin A to children with potential deficiencies, which it began to do in the mid 1970s. It notes the importance of nutrition education and mentions the usefulness of fortifying sugar with the vitamin. Page is compact.

Ophthalmology
Prevention

Web

5/9/2002

Yahoo! Groups : WilsonsList

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Though not especially busy in recent years, the "WilsonsList" e-mail list hosted by Yahoo! Groups is intended to provide a support forum for those affected by the genetically transmitted Wilson's disease, a condition in which excessive copper is not properly removed from the body. Sign up for the list on this page, and, once you do, feel free to peruse the small archive.

Gastroenterology
Neurology

Web

5/9/2002

Homepage: Wilson's Disease Support Group UK

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Britons affected by Wilson's disease can find compassion on this site, which is home to an online support group for those in the UK affected by the genetic condition (in which excessive copper accumulates in the body). Attractive little site features a welcome page, an online newsletter, a FAQ on the condition followed by links (click on "Info Centre"), and details on joining the group and subscribing to its e-mail list. A short list of patients and doctors involved with the group's programs is also available.

Gastroenterology
Neurology

Web

5/9/2002

The Wilson's Disease Association International

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The Wilson's Disease Association International is an international, all-volunteer, non-profit organization for sufferers of the condition (which causes excessive copper accumulation in the body) and their friends and families. The group's attractive website is home to plenty of information about the disease. Click on the "Site Index" link to find a page full of direct links to the site's various contents. These include clinical trial information, a listing of copper contents of various foods, details on the diagnosis of the condition, a guide to centers of excellence around the country, membership information, FAQs, and more. Newsletters and references to other websites and books are also presented. Site is very extensive and is well designed. It should be patients' first stop in their search for reliable and understandable Wilson's disease information.

Gastroenterology
Neurology

Web

5/9/2002

wilsons disease

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A photograph of Samuel Wilson, the man who discovered what became to be known as Wilson's disease, appears on this page, which briefly summarizes the condition. Text explains that the disorder is genetic in origin, that it can be detected by testing for low levels of the protein ceruloplasmin, and that its symptoms include Kayser-Fleisher rings (brown discoloration around the cornea) and excessively emotional behavior. Contents are concise and easy to read; they are part of a website for a medical school course.

S P

Gastroenterology
Neurology

Web

5/9/2002

Gastroenterology - Wilson's Disease

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This in-depth description of Wilson's disease--a condition in which the body's copper metabolism dysfunctions, causing excessive accumulation of the mineral in the body--is presented by the Vanderbilt University Medical Center. It describes the genetic condition (also known as hepatolenticular degeneration), and explains its causes, symptoms, and the exact mechanism by which copper is mishandled. Text explains how to diagnosis the condition correctly (this is difficult, it notes) and addresses the various methods of treatment. Prose is clear, technical, and very detailed. References to other articles appear at the end of the text.

MD S

Gastroenterology
Neurology

Web

5/9/2002

Wilson's Disease

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The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) of the National Institutes of Health (NIH) presents this profile of Wilson's disease, which describes how sufferers of the condition are unable to release copper into bile but instead accumulate it in their livers. Page tells of the visible symptoms that indicate the condition is present, and notes that lifelong treatment (which is generally effective) is required. Text is concise, readable, and reliable.

Gastroenterology
Neurology

Web

5/9/2002

MEDSTUDENTS-METABOLIC DISORDERS-Wilson's Disease

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Simple page describes Wilson's disease, a condition in which excessive amounts of copper accumulate in the body. Sufferers experience various neurological symptoms (stilted movement, drooling, decreased mental function) and liver problems. Text describes what clinical manifestations accompany the disease, the proper way to make a diagnosis (by observing Kayser-Fleischer rings, low serum ceruloplasmin, and increased amounts of liver and urinary copper). It ends by emphasizing early intervention and outlining treatment methods. Page is part of a Brazilian website but is written in English.

S P

Gastroenterology
Neurology

Web

5/9/2002

NINDS Wilson's Disease Information Page

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The National Institute of Neurological Disorders and Stroke (NINDS) of the National Institutes of Health (NIH) presents this page of information on Wilson's disease, a condition in which excess copper accumulates in the body. Symptoms generally don't appear until some years into life (late childhood, adolescence, or even adulthood) and include tremor, rigidity, drooling, and failing mental capacities. Liver disease also develops in many sufferers. Page explains all this, briefly discusses treatment, prognosis, and research, and lists a number of references to articles as well as links to related websites.

Gastroenterology
Neurology

Web

5/9/2002

8th International Conference on Wilson Disease and Menkes Disease

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This homepage documents a conference on Wilson disease and Menkes disease held in Leipzig, Germany, in the spring of 2001. Both of these conditions are defects of the human body's copper metabolism; in Wilson disease, copper accumulates, while in Menkes, it cannot be retained. Find general information about the conference, a schedule of events, and two different programs (one outlining scientific events, another outlining social programming). Though the event has come and gone, there are plenty of speakers' names and contact details, which may be useful in tracking down more current information on copper metabolism research and treatment methods.

Gastroenterology
Neurology

Web

5/9/2002

WE MOVE - Wilson Disease

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The fine WE MOVE website for people with movement disorders presents this profile of Wilson disease, a rare genetic condition causing a disruption to normal copper metabolism; sufferers experience excess copper accumulation in their bodies. Thorough text explains everything about the condition: its symptoms (which may not become apparent until late childhood or adolescence--or even adulthood!), its genetic cause, its diagnosis, and its treatment method. The condition leads not only to movement impairments (as it erodes the nervous system) but also to sometimes serious liver damage. Treatment naturally begins with restriction of copper in the diet but also may include drug therapy to remove copper from the body and, in serious cases, liver transplantation.

Gastroenterology
Neurology

Web

5/9/2002

Wilson's disease hub

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Wilson's disease, a genetic disorder causing excessive copper accumulation in the body, is defined briefly on this site. It is then followed by a lengthy index to websites on the topic. Linked sites include overviews, case reports, discussion groups, clinical trials, association, foundations, images, and article abstracts. Some links are annotated, but there is no on-site content: this is simply a links page.

Gastroenterology
Neurology

Web

5/9/2002

N/N

Vitamin C and Scurvy

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Primates and guinea pigs are the only other animals besides humans that are unable to synthesize their own vitamin C; this site warns that scurvy can happen to any of us--monkey and human alike--if we fail to take in adequate amounts of the vitamin. Page describes the science of vitamin C metabolism and describes the symptoms of the condition, which include the breakdown of all areas of the body that are held together by collagen. Page is concise; an illustration of vitamin C's chemical structure is presented in the upper right-hand corner of the page.

Prevention

Web

5/9/2002

A Simple Experiment on Scurvy

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In 1747, the ship doctor of the HMS Salisbury, James Lind, performed an experiment on sailors heading from England to the Plymouth colony. In it, he administered various substances--herbs, apple juice, sea water, vinegar, and citrus fruits--to sailors stricken with scurvy. In doing so, he quickly realized that citrus had the power to cure the condition, though at the time he did not recognize that vitamin C deficiency was to blame for it. Links lead to general vitamin C information as well as to Dr. Lind's official report on his experiment. Story is quite interesting.

Prevention

Web

5/9/2002

Medic-Planet Scurvy

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Medic-Planet's fact file on scurvy tells of how it was once common among seafarers, who lacked sufficient fresh vegetables in their diets, and how it still is seen occasionally in the United States. A deficiency disease caused by too little vitamin C intake, the condition causes swollen gums, loose teeth, skin conditions, and anemia. Treatment and recovery are usually quite swift, involving simply the administration of a vitamin C supplement and the consumption of a diet with additional fresh foods.

Prevention

Web

5/9/2002

SCURVY

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Learn all about scurvy, which this site calls "the world's oldest known deficiency disease." It focuses on children with this condition--which results from inadequate consumption of vitamin C (ascorbic acid)--and describes how infants fed artificial milk tend to be more at risk for the condition (human breast milk contains twice the vitamin C as cow's milk) and how mentally impaired youngsters who cannot chew properly also are at risk. For treatment, it recommends a number of natural cures, but mainly implores readers simply to focus on a healthy, less cooked diet with plenty of fresh fruits and vegetables (especially citrus fruits, bitter gourd, tomatoes, and leafy vegetables). Site comes from India.

Prevention
Complementary Medicine

Web

5/9/2002

Medic-Planet Rickets

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The Medic-Planet website presents its fact file on rickets, outlining the symptoms and the causes of this disease of bone deterioration. It notes that while dietary factors may be involved, the cause of rickets tends to be too little exposure to sunlight, which is necessary for the body to synthesize vitamin D (which is a crucial for the metabolism of phosphate and calcium). Treatment is usually straightforward, notes the page, involving a supplementation regimen of vitamin D and calcium. Contents are concise.

Physiology
Prevention

Web

5/9/2002

MEDLINEplus Medical Encyclopedia: Rickets

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The MEDLINEplus entry for rickets explains that it is a weakening of the bones among children, which is caused by a lack of Vitamin D, calcium, or phosphate. Typically, its cause is related to receiving inadequate sun exposure (due either to indoors living or residing in a dark climate), as human beings are able to synthesize vitamin D simply by being outside in the sunshine. Lengthy outline also describes the variety of symptoms associated with the disease (including muscle cramps, impaired growth, bowleggedness, and weakness), and it summarizes treatment options. An illustration accompanies the text.

MD P

Physiology
Prevention

Web

5/9/2002

Medic-Planet Pellagra

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The Medic-Planet website offers this fact file on pellagra, the condition that accompanies niacin deficiency. Page defines the condition and describes what can cause it: a diet low in the B-complex vitamins, alcoholism, and drug addiction (the two latter of which wreak havoc on the body's ability to metabolize vitamins). Symptoms are difficult to recognize in the early stages, according to the page, but it outlines what to expect among those with more advanced cases (including diarrhea, skin and mouth problems, and dementia). Page is concise but thorough.

Gastroenterology
Prevention
Neurology

Web

5/9/2002

MEDLINEplus Medical Encyclopedia: Pellagra

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This is the MEDLINEplus entry on pellagra, the condition that results from a dietary deficiency of niacin, which is found in the B-complex vitamins. Entry is very brief, describing how current instances of the disease in the United States tend to be seen among alcoholics (whose metabolism have been altered) and those recovering from gastrointestinal diseases. An illustration depicts the USDA food guide pyramid, which is presented to support the fact that proper nutrition is the key to staving off pellagra.

Gastroenterology
Prevention
Neurology

Web

5/8/2002

NIACIN Pellagra dementia

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Supplier of vitamins and minerals explains the crucial role played by niacin in preventing pellagra dementia. It states that as coenzymes nicotinamide adenine dinucleotide (NAD) and NAD phosphate (NADP), niacin is crucial in accepting electrons and donating hydrogen in many bodily reactions. Though page does briefly describe the danger of pellagra, it is more of a general page about niacin, describing its uses, dietary sources, and methods of supplementation.

Gastroenterology
Prevention
Complementary Medicine
Neurology

Web

5/8/2002

Pellagra

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Brief entry from the online edition of the World Book Medical Encyclopedia describes pellagra, a condition that results from niacin deficiency. The condition is easily cured and prevented, as niacin is a component of the B-complex vitamins. Page describes the many symptoms that occur with the condition, including nausea, dementia, diarrhea, and, if untreated, death. The condition may result from alcoholism, cirrhosis of the liver, or malabsorption of food; simple nutritional deficiencies are rare in developed nations.

Gastroenterology
Prevention
Neurology

Web

5/8/2002

Main - Dr. Joseph Goldberger and the War on Pellagra

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Read the insiring and captivating story of Dr. Joseph Goldberger, the man who championed the idea that diet--not a germ--was the cause of pellagra. The travails he faced by pointing out the inadequacies of the diet among the poor in the U.S. South (and by indicting the sharecropper system as a major factor in pellagra's widespread existence) are described in detail. There are also plenty of photos available, documenting the doctor's journeys throughout the South. Though Dr. Goldberger died of a rare form of cancer before he learned precisely what nutritional factor would put pellagra into submission (it is the B-complex vitamins, a fact which was discovered by Conrad Elevjhem in the years following Goldberger's death), his energy laid the foundation upon which the pellagra cure was built. Story is well written, and site is attractive. It is provided by the National Institutes of Health (NIH).

Dermatology
Gastroenterology
Prevention
Neurology

Web

5/8/2002

Medic-Planet osteomalacia

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Fact file on osteomalacia covers the symptoms, associated conditions, prevention, and treatment of this condition, which involves the weakening of the bones due to lack of available calcium or phosphate (which may be due to vitamin D deficiency, fat metabolism problems, or kidney dysfunction). Links within the text lead to details on terms related to the disease. Page is brief; language is accessible to patients.

Physiology

Web

5/8/2002

Osteomalacia hub

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Looking for websites on the topic of osteomalacia, a bone metabolism disease that is closely related to rickets? This site is helpful: it indexes dozens of websites across the Internet on the topic. Some of the links are briefly annotated, and they lead to resources such as article abstracts, FAQs, overviews, images, case reports, and clinical trial information. There are no on-site contents, but the links lead to many helpful pages.

Physiology

Web

5/8/2002

Osteoporosis and Bone Physiology: Osteomalacia

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Susan Ott, M.D., presents this fine page of information on osteomalacia, which is part of a continuing medical education website on osteoporosis and bone physiology. Page features x-ray images of bones exhibiting the condition, which is called rickets when it occurs in children (who end up with bow legs because of it). Charts, graphs, and a number of color photomicrographs are available; they complement very brief text and a couple of links, one of which leads to a thorough page on the topic of oncogenic osteomalacia. Site design is attractive and neat.

L R

Physiology

Web

5/8/2002

Wheeless' Textbook of Orthopaedics - Osteomalacia

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This all-text page is the entry on osteomalacia from the online edition of the Wheeless' Textbook of Orthopaedics. It features basic information about the condition, which is a metabolic bone disease in which the essential problem is that enough calcium or phosphate is not available to help with mineralization of the bone. Symptoms are similar to those seen in children with rickets. Outline covers clinical manifestations, suggested laboratory tests, and typical findings of a histologic examination. Contents are sparse but to the point; abbreviated language is quite technical.

Physiology

Web

5/8/2002

Osteomalacia.html

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Brief page presents X-ray images and text that cover the conditions known as osteomalacia and rickets. These conditions, which deteriorate the bones and cause tenderness and weakness, can result from vitamin D deficiency, but this is rare because vitamin D is produced simply by exposing one's skin to the sun. A more common cause, according to this site, is steatorrhea (a fat malabsorption problem) or kidney dysfunction. Page very briefly describes diagnosis and treatment.

MD S P

Physiology

Web

5/8/2002

Oncogenic osteomalacia

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22

Phosphate and vitamin D deficiencies cause the problem of oncogenic osteomalacia, a rare and unusual condition in which small tumors develop in the area of the sinuses (either in the nearby bones or in surrounding connective tissues). Patients also experience joint and muscle pain, and children with the condition usually have rickets. Treatment is straightforward: physicians should administer calcitrol and phosphate. This brief page describes all this and features several photos of the small tumors. It is part of a larger

MD S P

Physiology

Web

5/8/2002

OMIM ENTRY 309400 -- Menkes Syndrome

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18

This technical fact file on genetic condition Menkes syndrome is a robust collection of details on the clinical and biochemical features of the disease (in which copper metabolism fails), its diagnosis, its management, and the work into genetics that has been done in relation to the condition. At the end, find an expansive list of references to Menkes-related articles published in the scientific and medical literature. Aimed at researchers and doctors, this text is very technical, but it is an excellent jumping-off point for professionals looking for information on the topic. Background on the history of the condition and on population and animal studies is provided.

Gastroenterology
Neurology
Pediatrics

Web

5/8/2002

Menkes Syndrome

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18

Brief page outlines the condition known as Menkes syndrome--its causes, its symptoms, and its poor prognosis. The condition, a genetic disease linked to the X chromosome, can not be treated effectively by any means, though certain things can help to alleviate some of the many symptoms. Epidemiology and pathophysiology are described in technical terms. Page is short but contains adequate information to familiarize readers with the condition.

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Gastroenterology

Web

5/8/2002

Yahoo! Groups : menkes_kinky_hair

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9

This is the homepage for the menkes_kinky_hair discussion/support group hosted by the Yahoo! Groups e-mail list service. It is a place for parents and friends of children affected by the genetic condition known as Menkes (or "Kinky Hair") syndrome, in which copper metabolism fails. Exchange words of support and understanding with others who know what you're going through. Details on signing up for the low-traffic (20-80 messages per month) list are available.

Gastroenterology
Neurology
Pediatrics

Web

5/8/2002

N/N

NINDS Menkes Disease Information Page

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27

The National Institute of Neurological Disorders and Stroke (NINDS) of the National Institutes of Health (NIH) presents this page of information on Menkes disease, a genetic condition characterized by the inability of infants to absorb copper effectively. Brief overview of the condition describes its most typical symptoms: "strikingly peculiar" hair, seizures, temperature instability, and psychomotor deterioration. Other complications are likely, and most children with the condition die in the first decade of life. Links lead to related organizations and to an announcement seeking affected individuals for a research study.

Gastroenterology
Neurology
Pediatrics

Web

5/8/2002

Menkes Kinky Hair Syndrome -- Justin Gordon

2
N/A

Personal site introduces Menkes ("Kinky Hair") syndrome to the public through the story of a young boy named Justin Gordon. Front page describes a conference for children with the syndrome and their parents, while the interior pages provide photos of the little trooper, an update on his current condition, details on the symptoms of the disease, and a link to an e-mail listed hosted by Yahoo! Groups. Site is fairly compact and features many photos as well as plenty of details about Justin's treatments (including occupational therapy, developmental intervention, and regular visits to the pediatrician).

Gastroenterology
Pediatrics

Web

5/8/2002

Friends of Alexander Deihl

2
21

This personal site describes the trials and successes of a young boy named Alexander Deihl, who suffers from a genetic condition named Menkes syndrome which prevents the effective absorption of copper in the intestines. One of this site's pages explains the condition, outlining the few treatments that are available and noting that death usually results within the first few years of life. It encourages genetic counseling for those considering having a child. Site also offers pictures of Alex, a chat room, and a guestbook. Details on a conference on Menkes syndrome are also available.

Gastroenterology

Web

5/8/2002

drkoop.com: Conditions And Concerns: Medical Encyclopedia: Beriberi

1
21

Thiamine deficiency, which exhibits itself in human beings as a disease known as beriberi, is fairly easy to avoid with a well-rounded diet. This page on DrKoop.com explains how beriberi has become almost non-existent in the United States, but it also notes that breastfed infants can sometimes be susceptible to the disease, as can individuals who eat a hefty amount of a certain type of fish (which contains an enzyme that prevents thiamine absorption). Page describes signs and symptoms of the condition, outlines which tests are usually administered to suspected sufferers, and lists complications. Links lead to details on related conditions.

Prevention
Neurology

Web

5/8/2002

Diagnosing Beriberi in Emergency Situations

2
5

A doctor from Aberdeen University, writing on the Emergency Nutrition Network website, instructs physicians (especially those working in nutritionally deprived areas of the developing world) on the most effective ways to diagnose beriberi in emergency situations. Text describes a recent outbreak of the condition in Africa, when to suspect beriberi (i.e., what signs to look for in the diet and in affected individuals), and how to differentiate among the various types and degrees of the condition (which include "wet beriberi," "dry beriberi," and "Korsakoff's psychosis," among others). Page concludes with treatment information. Article is thorough and well written.

Prevention
Neurology

Web

5/8/2002

1.3.1 BERIBERI

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22

Page describes the various treatment methods for beriberi, or thiamine deficiency. It covers both drug-based and non-drug-based treatments; the former includes the administration of thiamine, sodium bicarbonate, and furosemide, while the latter involves proper nutrition and limiting or eliminating intake of alcohol. In cases of Wernicke�s encephalopathy, which is the most serious form of thiamine deficiency, immediate and intensive administration of the vitamin is recommended. Page presents this information in a clean graph.

MD S P

Pharmacology
Prevention
Neurology

Web

5/8/2002

Beriberi

1
21

The World Book Medical Encyclopedia presents its entry on beriberi, a disease caused by a lack of sufficient vitamin B1 (thiamine) in the diet. Though present in southern and eastern Asia to some degree, it is usually seen in the west only among alcoholics, whose metabolisms have been rendered ineffective at absorbing the vitamin. It causes nerve and muscle degeneration, and it is treated simply by administering the vitamin to patients. Page describes all this in succinct terms.

Prevention
Neurology

Web

5/8/2002

Beri-beri

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The Vanderbilt University Medical Center looks at the first reported case of beri-beri, or thiamin deficiency (which was observed in 1642). It focuses on the books that resulted from these observations, presenting images from the original editions. Few details are offered about the condition itself, but the images of the early publications are interesting.

MD S P

Prevention

Web

5/8/2002

Linus Pauling lectures on Vitamin C and Heart Disease

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32

Linus Pauling, one of the foremost promoters of the importance of vitamin C in the world, addressed an audience at the Lawrence Berkeley National Laboratory in 1993. This brief article summarizes the lecture he delivered, which explained that human beings unfortunately lost the ability to produce vitamin C themselves most likely because they were evolving in habitats rich in plant life, which supplied the vitamin in abundance. Today, most people do not live in such environments, and he attributes many of the most destructive modern diseases--such as cancer, heart disease, and (less destructive) the common cold. Article is brief but covers interesting ideas.

Prevention
Complementary Medicine

Web

5/8/2002

Medic-Planet Vitamin-deficiency diseases

1
22

Ever worry what would happen if you didn't take your vitamins? This site tells you. It examines each vitamin, explains its function, and discusses the diseases that are associated with deficiencies. Many of these deficiencies are seen primarily among alcoholics and drug addicts, whose metabolisms have been greatly affected by the excessive alcohol consumption. At the end of the page appears a chart, which guides viewers to common food sources of necessary vitamins. Site is concise and full of good, useful information.

Prevention
Complementary Medicine

Web

5/7/2002

Food for Thought - 8/29/98 - Magnesium: We don't appear to be getting enough

2
18

This "Food for Thought" article from Science News Online presents a number of brief considerations of the important role magnesium plays in many of the human body's functions; in fact, it notes that over 350 enzymes rely on magnesium in order to fulfill their functions. Page describes the role of magnesium in combatting headaches and its apparent ability to assist the body in lowering blood pressure. It also guides viewers toward some common dietary sources of the mineral. Page ends with references to other sources of information about the mighty mineral. Page is attractive and information is thorough and easy to read.

Prevention
Complementary Medicine

Web

5/7/2002

Magnesium

2
24

This two-part series of pages discusses the signs and symptoms of magnesium deficiency and what kind of havoc it can wreak with one's body. Problems discussed include allergies and chemical sensitivities, anxiety and psychiatric disorders, aorta weakness, asthma, and attention deficit disorder (ADD/ADHD). Lengthy but very readable text describes how magnesium deficiencies have been found among schizophrenics and those with other psychoses and how it lowers histamine levels among patients with many allergies. Plenty of links are available to PUBMED references that document the link between magnesium and this array of disorders. Page is a very good place to look when first researching the possible symptoms of magnesium deficiency. Site design is neat and attractive.

Prevention
Complementary Medicine

Web

5/7/2002

INTRODUCTION TO COENZYME Q10

1
22

Dr. Peter H. Langsjoen, M.D., presents a series of pages defining coenzyme Q10 and explaining its significance to human health. He discusses the history of its discovery (when it was isolated from beef heart mitochondria in 1957), the signs of coenzyme Q10 deficiency, and the use of coenzyme Q10 to treat heart disease. Explanations are basic, and he suggests that those considering taking the supplement discuss it with their doctor. Site is part of the website of the International Coenzyme Q10 Association.

Prevention
Complementary Medicine

Web

5/7/2002

An FDA Guide to Dietary Supplements

2
92

Article from FDA Consumer� magazine, a publication of the U.S. Food and Drug Administration, describes the skyrocketing sales of vitamin, mineral, and herbal supplements over the past decade. It outlines the provisions of the 1994 Dietary Supplement Health and Education Act (DSHEA), which established an office within the National Institutes of Health (NIH) to monitor the supplement industry and also laid out guidelines for assessing claims made by supplement manufacturers. Article also explains how the government monitors products under the new act, and it also warns consumers to beware of fraudulent claims. Text is written in accessible language, yet it still maintains a thoroughgoing and scientific point of view.

Prevention
Complementary Medicine

Web

5/7/2002

Do You Need a Multivitamin/Mineral Supplement?

1
28

The American Dietetic Association guides consumers through the process of determining whether or not they should consider taking a multivitamin/mineral supplement on this page, which takes the form of a questionnaire. It probes viewers on their day-to-day dietary choices, afterwards giving them a rating--anywhere from 15 (a "Food Guide Pyramid Expert") to 0 (optimistically labelled "Keep Trying!"). Page also lists a number of conditions under which supplements are recommended, such as pregnancy and agedness. Anyone believing themselves to have a nutritional deficiency should check out this page.

Prevention
Complementary Medicine

Web

5/7/2002

Self Discovery Through Obesity

1
29

According to the author of this article on InnerSelf.com, dieting and exercise are not the primary treatment for weight problems: rather, obese individuals should begin to address their weight problems by taking some reflective time for self-discovery. That is, she suggests that individuals really attempt to understand the causes--emotional, psychological, spiritual--of their obesity. She describes ways to do this and urges all readers to look at obesity not as a sign of weakness or degradation but as an illness. Prose is patient-friendly and concise.

Gastroenterology
Psychology

Web

5/7/2002

advancedweightloss2

1
15

Dr. Thomas D. Yarnell, Ph.D., a clinical psychologist, has taught weight-loss classes for 30 years. He offers a number of concrete suggestions for dieters on this site: that they extend each meal to at least 20 minutes (to allow their stomach time to signal their brain that it's full), that they drink plenty of water, that they eat hot peppers and mustards to stimulate their metabolism, and more. He also recommends plenty of exercise and never skipping meals. Contact information is available for the doctor, who lives in Biloxi, Mississippi.

Gastroenterology
Psychology

Web

5/7/2002

WebMD - Weight Control

3
3

This is the main page on the WebMD website to deal with the topic of weight problems. Articles highlight recent reports on obesity, discuss the causes and treatments of obesity, and educate viewers on healthy dieting and exercise strategies. Kelly Brownell, Ph.D., answers questions on weight management, and the site editors cull their favorite stories from throughout the site. Message boards are available at the linked Diet and Fitness Journal page, which allows users to document their eating and exercise habits in a supportive environment. Page is pleasantly, professionally designed and leads to a number of good resources.

Gastroenterology

Web

5/7/2002

WebMD - Obesity Intro

1
11

This page is a gateway into the offerings available on the topic of obesity on the WebMD website. It contains a summary of the condition and a link to body mass index (BMI) calculator, as well as links to several other obesity-related pages on the WebMD site. These include pages that describe the wide variety of health dangers to which obese folks submit themselves if they do not address their condition. Page is simple; click on the link in the upper-left of the page to access the "Weight Control Center," which has many additional resources.

Gastroenterology

Web

5/7/2002

100

Obesity from Veritas Medicine

1
N/A

This is the main page on obesity hosted by Veritas Medicine. There is little content offered, but links lead to pages that allow obese individuals to search for clinical trials that may be happening that address their condition. Users can register to receive personalized trial information. A newsletter is available that summarizes clinical research advances. Design is clean, but contents are minimal.

Gastroenterology

Web

5/7/2002

N/N

101

Understanding Adult Obesity

2
100

The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), one of the federally funded National Institutes of Health (NIH), presents this overview of adult obesity. Arranged in a FAQ-like style, the page defines obesity, describes how it is measured (and how it can be difficult to do this accurately with athletes, body builders, manual laborers, and other high-muscle groups), and outlines the genetic, environmental, and psychological factors that cause the condition. It also explains the often severe consequences of obesity and offers weight-management suggestions. References at the end of the page lead readers to other sources of quality information. Text is thorough, concise, and easy to read.

Gastroenterology

Web

5/7/2002

102

UNCOMMON COURAGE

1
22

Uncommon Courage is an organization dedicated to addressing discrimination towards overweight women and children. Group advocates healthy living at any weight. Small site offers positive words and details on support groups in Des Moines, Baltimore, Cincinatti, Milwaukee, and in several other cities. Note: site does not advocate or support typical types of dieting but instead focuses on the emotional support of those who suffer size-based discrimination. Contents are minimal.

Gastroenterology

Web

5/7/2002

103

Surgeon General Asks Communities To Address Obesity

2
10

The HealthLink service of the Medical College of Wisconsin presents details on the U.S. Surgeon General's recent call for communities nationwide to address the overwhelming problem of obesity in America. Statistics are presented documenting just how widespread the problem has become (over 60 percent of adults in America are obese, as are over thirteen percent of all adolescents), and specific advice is offered, such as instituting more rigorous physical education programs in the nation's public schools. A link to a body mass index (BMI) calculator is available. Article is thorough, readable, and full of useful information.

Gastroenterology

Web

5/7/2002

104

1999 Slim Chance Awards

1
25

The Slim Chance Awards are given out by the editor of the Healthy Weight Journal each year to companies or individuals that promote the most unscientific, least effective diet schemes. Its awards include "Most Outrageous," "Worst Product," and "Worst Claim." Page presents the 1999 winners of the awards and tells why they deserve them. It also links to listings of award winners in past years and to other sources of information on diet frauds. Page is part of the Quackwatch website.

Gastroenterology

Web

5/7/2002

105

The Scientific Definition of Obesity and its Dangers 1/26/02

1
11

A list of details about obesity is found on this page; it has been extracted from an article in the Western Journal of Medicine. The list describes a number of things that are known about obesity. It explains tendencies among those with weight problems (overconsumption of sugars and other refined carbohydrates, lack of physical activity, etc.), possible complications of obesity, the ineffectiveness of certain weight loss programs, and more. References appear at the end of the page, after a brief interjection by the doctor who has compiled the information, who advertises his weight-loss guidance services. There are a number of interesting statistics available on this site.

Gastroenterology

Web

5/7/2002

106

Roles of Mental Health Professionals in Multidisciplinary Medically Supervised Treatment Programs for Obesity

2
22

Article describes the roles that mental health professionals often play in treating those with obesity. It is detailed and fairly long. The abstract that begins the article notes that effective case models demonstrating multidisciplinary approaches to weight management have been lacking, and it aims to present one in the text that follows. Language is not especially technical, but the article is more applicable to an audience of professionals than to one of the general public. Over 75 references follow the text.

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Exercise Therapy
Gastroenterology
Psychology
Psychiatry

Web

5/7/2002

107

R C O R - The Rochester Center for Obesity Research

2
5

The Rochester Center for Obesity Research, located in Rochester Hills, Michigan, aims to conduct and support research into the causes of and treatments for obesity, to offer a comprehensive program to help individuals manage their weight, and to educate the public and the research community about the condition. Compact site introduces the group's trustees, outlines its resources, and introduces upcoming activities (though this last feature is out-of-date). A small set of links is also available. Site attractive and clean, but content is minimal. Contact group directly for additional information.

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Gastroenterology

Web

5/7/2002

108

Planktonitis

1
13

Page, which opens with a picture of a giant blue whale, presents the theory that obesity is caused not by poor diet and unhealthy lifestyle but by microscopic organisms that live in the air. Just like whales who survive by eating microscopic plankton, claims the site, so do large human beings take on extra calories by consuming microscoping organisms in the air they breathe. While this theory is far from accepted, it may be interesting to some. It features photos, cartoons, and an anonymous letter from a "planktonitis sufferer." Contents are sparse.

Gastroenterology

Web

5/7/2002

109

Obesity Treatments, Diet and Nutrition

3
32

This website, presented by specialists from the European Association for Coordination and Research in Obesity and Nutrition (ACRON), is attractively designed and home to a fair amount of information. This includes statistics on the worldwide distribution of obesity, details on digestive surgery, plastic surgery information, a discussion of possible complications. Thorough information on all available prescription weight-loss medication is also offered. The "Practical corner" guides obese individuals through the various steps they should be taking to address their condition (with different sets of advice tailored to different degrees of obesity). Site is fairly thorough; it is available in both French and English.

Gastroenterology

Web

5/6/2002

110

Obesity News from Obesity Week -- Your Online Obesity Newsletter

2
36

Obesity Week is an online newsletter for those with an interest in current obesity-related news. Each week, subscribers have access to current tidbits of information about obesity, especially research updates and public health alerts (of which there are more and more, as obesity in America takes on epidemic proportions). To gain access to all substantive materials, users must subscribe. For casual viewers, browse the "About this Site" section to learn about what is offered.

Web=19.95

Gastroenterology

Web

5/6/2002

111

Obesity Virus?

1
27

A 1997 article describes the possibility that obesity is linked to a virus. Up to fifteen percent of obese people carry antibodies in their systems identical to those that have been found to make animals obese, thereby making it seem plausible that this virus has a similar effect on humans. Brief text, which is written in a patient-friendly newswriting style, describes the study from which this conclusion was drawn and its results.

Neurology

Web

5/6/2002

112

Obesity the answer

1
17

A British woman claims to have a discovered a very effective weight loss secret, and she advertises it on this site, "Obesity the Answer." It appears that she views one's preference for butter over margarine as proof that your ancestors subsisted on a predominantly animal-based diet, and that this limits the efficacy of traditional dieting regimens. If this describes you, she encourages you to become a volunteer in her informal study. Before-and-after photos of the site author are available. Should you be confused by the British terminology, keep in mind that one "stone" is equivalent to fourteen pounds. Site is basic and non-scientific, but author hopes to work with the medical establishment in the future.

Gastroenterology

Web

5/6/2002

113

Spotlight Health - Obesity

2
16

The Spotlight Health website offers this index to its obesity-related contents, including articles describing the condition in its various degrees and its causes (including morbid obesity and its particular complications). Learn how others have handled their weight problems, with exercise, bariatric surgery, and a proper diet. A video clip of musician Carnie Wilson, who had gastric bypass surgery to correct her severe weight problem, is also available. Left-hand column contains links to basic information on the condition. Site is tidy; contents are limited but of high interest and quality.

Gastroenterology

Web

5/6/2002

114

Obesity on medbroadcast.com

1
21

Brief fact sheet on obesity offers a link to a body mass index (BMI) calculator and a bulleted list of causes of obesity. This list includes such items as genetics, socioeconomics, and psychology. It notes that both binge eating and night eating tend to be caused by unadressed stress. Page is very brief.

Gastroenterology

Web

5/6/2002

115

ANRED: Obesity. Is it an Eating Disorder?

2
35

The organization ANRED--which stands for Anorexia Nervosa and Related Eating Disorders--presents this brief consideration of whether obesity is a type of eating disorder. It quickly concludes that obesity is a complex phenomenon and moves on to help readers figure out what they can do about it. Interestingly, site notes that obese individuals are no more likely--and are perhaps, in fact, less likely--to have psychological problems than those of slimmer size. The majority of the page is a bulleted list of facts about obesity and guidelines for weight reduction strategies. It is straightforward and helpful.

Gastroenterology

Web

5/6/2002

116

TOAST - The Obesity Awareness and Solutions Trust

3
24

TOAST is a UK-based non-profit organization devoted to educating Britons about the issue of obesity and delivering information about effective weight management solutions to those who need it. Its attractive, uncluttered website offers a wide array of materials: articles and news pieces on obesity-related topics, personal stories of the emotional and psychological hardships faced by obese individuals (under "TOAST-Friends"), a directory of resources across the UK available to those with eating or weight disorders, and details on a prize available to those doing obesity-related research. Site encourages compassion for the obese and exhorts its viewers to remember that obesity is not just a public health problem but a source of great embarassment, emotional distress, and unhappiness for its sufferers. Most information is UK-specific.

Gastroenterology

Web

5/6/2002

117

An Obesity and Weightloss Support Site

3
25

This extensive, bilingual (English/Spanish) site presents a wide array of information on obesity--its causes and consequences, its effects on sexuality and pregnancy, and its particularly harmful effect on children. Details on diets and on other means of obesity prevention are also provided. There is also a trivia feature and a body mass index (BMI) calculator. All contents on site are delivered in a friendly, supportive manner. Leave a note in the guest book if you enjoy what is offered. Design is basic but not too cluttered; contents are quite extensive.

Gastroenterology

Web

5/6/2002

118

Get Zoned Australia: The Zone and Obesity

1
17

A fan of the high-protein/low-carb diet scheme implores his fellow Australians to ditch the carbs and join him in "the Zone." He outlines, in lengthy but casual prose, the reasons that the traditional high-carbohydrate diet is unhealthy and what steps obese individuals should take to transition to the diet he prefers. Page touts the benefits of the Zone diet and explains why it maintains steady levels of energy and a sustained feeling of fullness to individuals who follow it. Text is somewhat polemical, but is surely interesting to those who are considering this diet.

Gastroenterology

Web

5/6/2002

119

MEDLINEplus Medical Encyclopedia: Obesity

1
13

This is the fact file on obesity presented by the MEDLINEplus database, a service of the National Library of Medicine of the National Institutes of Health (NIH). It outlines various bits of information about the condition, including the fact that the number of obese children in America has doubled in only the last 20 years. It also recommends treatments (such as diet and exercise). Page is short and to the point; links lead to fact files on related topics.

Gastroenterology

Web

5/6/2002

120

Obesity

1
15

Brief overview of obesity discusses its prevalence, the demographics who are most affected, and the key recommendations suggested for rectifying the condition. Among the article's suggestions are that obese folks should stick to a diet that includes a calorie deficity of 500 to 1500 calories per day, that physical activity become integrated into their schedules, and that a careful maintenance program be continued for a full six months after full weight loss goal has been achieved. Text is clear and easy to read; article is brief but presents many good ideas.

Gastroenterology

Web

5/6/2002

N/N

121

Nikhil V. Dhurandhar, Ph.D.

1
21

Though the graphics do not work on this site of Wayne State University Associate Professor of Food Science and Nutrition Nikhil V. Dhurandhar, Ph.D., it still gives a bit of basic information on his research interest: the possibility that human obesity is caused by viral infection. Click on "What I Do" to learn about this work, and then click on "Why I Do It" to learn what motivates him. His resume/curriculum vitae and some links are also available on this basic homepage.

Gastroenterology
Infectious Diseases

Web

5/6/2002

122

NAASO: The North American Association for the Study of Obesity

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731

Conducting interdisplinary study in order to "develop, extend, and disseminate" knowledge is the goal of the North American Association for the Study of Obesity (NAASO), a professional organization based in Silver Spring, Maryland. Its mission also includes educating the government on the danger of obesity as a public healthh problem; highlights from this effort are available on the website, along with news updates, quotes from prominent public health officials, and a link to its journal OBESITY RESEARCH (the contents of which are available online). Funding information, a guide to positions available in the field of obesity research and treatment, instructions on how to sign up for an affiliated mailing list, and much more. Site is well-designed and full of high-quality content.

MD S P

Gastroenterology

Web

5/6/2002

123

Objective Medical Information on Obesity from Michael D. Myers M.D. Inc.

3
466

A sobering animated illustration depicting the swelling numbers of obese people in America opens this site, produced by Dr. Michael D. Myers, M.D. It covers the prevalence, definition, causes, psychological factors, related medical complications, and treatments of obesity. It also warns viewers away from gimmicky treatments and offers a FAQ. Interested in providing your patients with extensive obesity-related patient education materials? This site specializes in providing these; an order form is available. Site is ample, neatly arranged, and full of high-quality information.

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Gastroenterology

Web

5/6/2002

124

Lose weight gain health: Irish health and diet

2
18

Roche Pharmaceuticals offers this portal to weight-loss information and diet advice tailored to an Irish audience. Its contents include a body mass index (BMI) calculator, advice on determining the fat content of various foods, exercise guidelines, and brief summaries of the dieting successes of various individuals. Details on the services available to help dieters can also be found on this compact, attractive site.

Pharmacology
Gastroenterology

Web

5/6/2002

125

Weight Loss and Management Guide for Children

1
17

Eighty percent of all overweight children will remain overweight as adults if no early intervention is made in their eating and exercise habits. So reports this article on the KeepKidsHealthy.com pediatric website. It outlines healthy body mass index (BMI) ratings for children (and offers a link to a calculator for determining the BMI of your child) and describes specific sorts of behavior modifications that should be made: limiting television and snacking, encouraging your child to keep a diet journal, making healthy food available, encouraging exercise, etc. Article is clear and easy to read, with plenty of concrete suggestions.

Gastroenterology
Pediatrics

Web

5/6/2002

126

Information on Obesity

1
19

A company of doctors and pharmacists that prescribes and sells prescription pharmaceuticals online (mainly for the treatment of arthritis, baldness, impotency, and obesity) explains the basics of obesity on this page. It includes various statistics about obesity and its prevalence among Americans--especially among young people, for whom it is becoming a true epidemic. It also describes the results possible under certain drugs, such as Xenical. Page is basic and is meant mainly as a way of introducing potential customers to anti-obesity medications.

Pharmacology
Gastroenterology

Web

5/6/2002

127

Oral hCG (Human Choriogonadotropin) for the management of obesity

1
16

Article describes a double-blind study conducted to determine the efficacy of oral hCG (Human Choriogonadotropin) as a treatment for obesity. Summary and list of keywords fronts the article, which describes the history of this particular treatment, the research methods and results of this study, and a conclusion explaining that hCG can accelerate fat loss under certain circumstances. Prose is scientific but accessible to the general public. Page is presented by a hispanic healthcare website, but text is in English.

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Pharmacology
Gastroenterology

Web

5/6/2002

128

How to Spot a Dubious Diet Book

1
19

This article on the DrKoop.com website guides consumers through the selection of high-quality diet books. It focuses especially on what should not be included in such books: grandiose claims, dubious research references, uncredentialed authors. In this age of fad diets and abundant research, this page is a helpful hand to those seeking help in shedding excess pounds. Article is concise and written in plain English, and it includes a bulleted list of warning signs that the book you're reading is bunk.

Gastroenterology

Web

5/6/2002

129

Health Problems Related to Severe Obesity

1
16

The HealthLink service of the Medical College of Wisconsin presents this article, which discusses the wide variety of health problems that can be caused by unaddressed obesity. Cardiovascular problems and type-two diabetes head the list of ailments, but the article also mentions various respiratory problems, musculoskeletal problems, and severe heartburn (or GERD--gastroesophageal reflux disease). In short, the article contains sufficient gory details to alert those with weight problems to begin to slim down. It is written in clear, patient-friendly language.

Gastroenterology

Web

5/3/2002

130

Zeroing in on Genes Responsible for Human Obesity

1
14

Article discusses the latest research that has been done towards locating the gene responsible for human obesity. It notes that an area on chromosome-3 may hold the key to understanding obesity that is of a genetic origin. It is presented by the HealthLink service of the Medical College of Wisconsin; it was originally published in January 2001.

Gastroenterology

Web

5/3/2002

131

GADGETS FOR WEIGHT REDUCTION

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23

Though it is not really a gadget, the sauna or steam bath has been advertised for many years as a solution to obesity (the claim is generally that the heat will help "melt the fat away"). This site examines the sauna/steam bath as a weight management tool, dispelling many myths but also outlining its advantages--for many obese people, the extreme heat and humidity of the sauna softens their muscles and leads to general relaxation, alleviating chronic pains due to arthritis. Article also goes over the many safety precautions one should observe while in a sauna, as strokes or faintness can readily occur in such an overwhelmingly warm environment. Click back to the main page for many texts that dispel common medical myths, courtesy of this Indian health communications company.

Gastroenterology
Complementary Medicine

Web

5/3/2002

132

First Federal Obesity Clinical Guidelines Press Release

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30

This press release from the National Institutes of Health (NIH) discusses the establishment of the first-ever federally approved guidelines for diagnosing and treating overweight and obesity. While doctors have of course treated weight problems for years, this release tells how the guidelines became established and exhorts healthcare professionals to take them seriously due to the gravity and increasing frequency of the condition. Within the article is a summary of the guidelines in a list format. While most of the recommendations are directed at physicians, the text is written in a friendly manner accessible to a general audience. Press release is dated June 17, 1998.

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Gastroenterology

Web

5/3/2002

133

Dieting - Psychological Assessment, Research, and Training Services

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14

Details on dieting, diabetes, and binge eating are available on this website, which advertises the services of an assesment and training organization. Site discusses the high economic costs of the disorder, outlines the relationship between obesity and adult-onset (Type II) diabetes, and offers quotes by famous authors and musicians. Site is small, and not too much content is available.

Gastroenterology
Psychology

Web

5/3/2002

134

Research Chair on Obesity; Chaire de recherche sur l'ob�sit�

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98

The D.B. Brown Research Chair on Obesity at the Universit� Laval, in Quebec, Canada, was established in 1997 to support research into the causes, prevention, and treatment of obesity. The chair's website offers many, many pages, among which can be found details on upcoming conferences, nutrition regimens, professional resources, and basic obesity information. Much of site consists of links, but there is also plenty of original content (much of which can be found uner the "About the Chair" and "About Collaborators" sections). The "About Obesity" section contains a full guide to weight management conditions, including thorough but easy-to-read details on the prevalence of obesity in nations around the globe. Site is available in both English and French; the combination of original content and links available here make it a fine place to begin research into the topic.

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Gastroenterology

Web

5/3/2002

135

Complexity of Obesity by Mary Pat Palmer (Innerself.com)

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20

Author Mary Pat Palmer considers the claim that "big is beautiful"--and recognizes the value of this attitude when eating disorders become wide-spread--but she ultimately emphasizes that health is the most important value. It covers a variety of concerns, from the indoctrination of overeating patterns among children to the benefits of herbs and a holistic approach to weight loss. Details on specific herbs are outlined at the conclusion of the article, which is well written.

Gastroenterology
Complementary Medicine

Web

5/3/2002

136

Pediatric Oncall- Obesity

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12

The Pediatric Oncall service answers common questions about obesity among children. It notes that the vast majority of obesity cases are due to overeating and inactivity, and it recommends a treatment protocol for such children. It cautions parents to put children on a gradual weight loss program--not aiming for immediate major losses--in order to make sure that the gall bladder is not damaged. Page is short; contents are minimal.

Gastroenterology
Pediatrics

Web

5/3/2002

137

BARBARA'S OBESITY MEDS AND RESEARCH NEWS

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502

Barbara Hirsch, a woman who formerly wrestled with a morbid obesity problem, describes her experiences using medications to lose weight. She also has collected plenty of other of resources on the topic--over 500 pages worth, in fact. It is one of the major obesity websites on the Internet today. The front page of this site documents what has been updated recently, which often includes the site's monthly newsletter. Focus is on the development, safety, and effectiveness of weight-loss pharmaceuticals. A FAQ is available, as is information on becoming a subscriber to Barbara's service and an A to Z index of all site contents. Details on obesity and diet and obesity and disease are also offered. Site is very extensive and well designed, but some portions are accessible only to those who pay the subscription fee.

Pharmacology
Gastroenterology

Web

5/3/2002

138

Association for Morbid Obesity Support

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386

Those with extreme weight problems--who are known as morbidly obese--can turn to the Association for Morbid Obesity Support for assistance from others who know what the experience entails. Over 78,000 people are members of this site, and its very extensive contents offer plenty of resources for them. Find member profiles, photo galleries, personal stories, news, and a chat feature. Emphasis is on surgical corrections for weight problems; there are plenty of photos and testimonials available documenting the transition over months and years of those who have had surgical procedures done. Several pages describe the various surgical procedures that are currently available, and a directory of physicians who perform the procedure can also be perused. Click on "Site Map" to find a listing of the dozens and dozens of resources that are available on this site. Comprehensiveness of site is sure to keep visitors surfing for many hours. Site is an excellent resource.

Gastroenterology
Surgery

Web

5/3/2002

139

American Society of Bariatric Physicians (ASBP) - Medical society for the treatment of obesity

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339

The American Society of Bariatric Physicians (ASBP) is the pre-eminent professional organization for doctors who specialize in the treatment of obesity and weight management issues. Its website offers a FAQ on obesity issues, presents the group�s mission statement and a summary of its undertakings, compiles medical news on the topic, and outlines continuing education opportunities for professionals. The �ASBP Store� presents a catalog of publications offered by the group, including cookbooks, pamphlets, and low-fat/low-calorie recipes. There is also a section for members only. The links section leads to other websites the present a professional, authoritative perspective on weight management. Site is neatly designed and easy to navigate.

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Gastroenterology

Web

5/3/2002

140

aceZones.com : Life Style : Health

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16

This page holds a collection of articles on health topics related to obesity. Articles sport such titles as "Low-Fat Mice Hold Clue to Obesity Treatment" and "Cancer Society Warns on Obesity." Text is written in an accessible, newspaper-style format. Information is not very penetrating, as it consists solely of general-audience news writing, but there are plenty of research updates and health risk announcements available.

Gastroenterology

Web

5/3/2002

N/N

141

Medical Services Organization - Obesity

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4

The Medical Services Organization is the name of a clinic that provides surgical fat removal to morbidly obese individuals. Click through the group's site to see before-and-after photos of individuals who have had the surgery. The "Options" section features a summary of the many different procedures that are currently available or under development, from adjustable gastric band to tummy tucks and gastric bypasses. Links to support groups, nutritional counseling resources, and other support resources available to patients are also available. The clinic is located in Tacoma, Washington, and it is headed up by Dr. S. Ross Rox, a graduate of the University of Utah School of Medicine.

Gastroenterology
Surgery

Web

5/3/2002

142

Weight Loss Psychology - Brainwashing Diet Programs

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302

Learn about the possibility of convincing yourself to lose weight via the "brainwashing" techniques of repeating affirmations to yourself up to three or four hundred times per day. Site describes the procedure, provides instructions on how exactly it works, and provides quizzes, sample mantras, and details on common food allergies. Site is full of information about this alternative weight loss approach, but the hectic design can make locating desired information somewhat difficult. Just click around; it doesn't take long to get the gist of the program. Site contents blend into those of SelfHelp.com, which advocates the "brainwashing" technique as a solution to many common psychological and emotional ills.

Gastroenterology
Psychology

Web

5/3/2002

143

Project Walk

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10

Project Walk is the name of a treatment program designed to assist spinal cord injury (SCI) survivors to regain control of their muscles. It does this by encouraging spasms initially and eventually assisting patients to control these spasms. Site describes the group's operating theory, tells its history (including a remarkable success story of its first patient), and previews its current program. You can also learn about the people behind the program. Scroll through the faces in the upper-right window to learn about patients' success stories. The entry criteria section spells out the type of patients who can benefit from the program.

Neurology

Web

5/3/2002

144

The Dobelle Group - Homepage

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N/A

The Dobelle Group is a company that manufactures and distributes a variety of resources for those who suffer from paralysis or related conditions: pacemakers to control breathing for ventilator-dependent individuals; peripheral nerve, spinal cord, and deep brain stimulators to alleviate chronic pain; and conus medullaris stimulators to regulate urogenital dysfunctions. The company is also involved in developing solutions for artificial vision. Site introduces its various products, offers a patient questionnaire, and presents a journal article describing its success with its artificial vision research. Focus of site is on the artificial vision work. Design is clean, and site is easy to navigate.

Neurology

Web

5/3/2002

145

Yahoo! Groups : scic

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11

Spinal Cord Injury Caregivers is the name of this e-mail forum hosted by Yahoo! Groups. It allows all those who are familiar with the challenges faced by caregiving parents, friends, and partners to exchange messages of support and advice. List traffic has become quite robust; it now features anywhere from 100 to 700 messages each month. Details on signing up are available, and a link leads to a personal page describing the function of the list in depth.

Neurology

Web

5/3/2002

146

HealthBoards Bulletin Board - Spinal Cord Disorders

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Find a community of support among other spinal cord injury survivors and those living with other spinal cord ailments on this bulletin board, a part of the HealthBoards network of medical forums. Board features steady but not overwhelming traffic. Its posts cover such topics as medications, spina bifida, chronic back pain, and cervical spine.

Neurology

Web

5/3/2002

147

Eastern Paralyzed Veterans Association

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1453

Serving primarily those veterans affected by spinal cord injury or other paralyzing conditions who reside in New York, New Jersey, Connecticut, and Eastern Pennsylvania, the Eastern Paralyzed Veterans Association is the regional chapter of the national Paralyzed Veterans of America. It provides support and information services to all veterans who require it. On this site, find information on accessible architecture (including plans), assistive technology, and spinal cord injuries in general. A thorough selection of publications, including such titles as "Understanding the Americans with Disabilities Act" and "Wheeling to Fire Safety" is cataloged. News, details on government relations, and information on how to make donations to the group are also available. Those who are interested in getting involved in wheelchair sports can find thorough information on tennis, softball, rugby, and other activities. Site is attractively decked out in a red, white, and blue theme, and its comprehensive contents are easy to access. Most materials are relevant to local residents, but there are also plenty of items helpful for all.

Neurology

Web

5/3/2002

148

Yale and Alexion report advance in spinal cord repair

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6

Press release from EurekAlert.org describes recent research advances made in the field of spinal cord injury (SCI) research by a collaborative endeavor undertaken by scientists from the Yale University School of Medicine and Alexion Pharmaceuticals, Inc. Genetically modified pig cells transplanted into non-human primates with spinal cord injuries have allowed these injuries to heal; usually they are untreatable. Press release discusses the significance of this discovery and its potential future applications.

Neurology

Web

5/2/2002

149

Therapeutic Uses of Stem Cells for Spinal Cord Injuries

1
5

This paper discusses the use of stem cell therapy among paralyzed survivors of spinal cord injury (SCI). It is scientifically astute, discussing the origins and life cycle of stem cells and including a thorough list of references to the scientific literature. Links are also available to many SCI-related resources.

Neurology

Web

5/2/2002

150

spinal research fund of australia incorporated

2
13

The attractive light orange-covered site of the Spinal Research Fund of Australia, Inc., introduces this organization, which was founded in 1996 to bring research advances to spinal cord injury (SCI) victims via clinical trials. So far, it has set up several laboratory facilities across Australia and has networked with biotechnology companies and other researchers. Compact site documents all this, contains statistics on research data, and provides details on its fundraising efforts. Design is contemporary and attractive, but contents are minimal.

Neurology

Web

5/2/2002

151

Spinal Research - a cure for paralysis from spinal cord injury

3
230

Spinal Research is a UK-based fundraising organization aimed at supporting research into the repair of human spinal cord injuries. Its compact, tidy website offers an overview of the research it has supported, news on all sorts of topics (ranging from announcements of large amounts of funds raised to details on celebrity endorsements), a calendar of upcoming events, and basic information about spinal cord injury (SCI). The group also sponsors a low-traffic message board, which can be accessed via this site. Click on the "Research" button for a well-written, comprehensible overview of the current state of reseach into curing paralysis; this area also contains individual profiles of affiliated scientists and their particular research focus.

Neurology

Web

5/2/2002

152

Spinal Cord Research Centre

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1871

The Spinal Cord Research Centre at the University of Manitoba, Canada, consists of fourteen primary researchers from six different departments/schools of the University of Manitoba. Its mission is to conduct basic research on neurological systems with the aim being to develop new clinical methods of addressing problems with these systems, especially those problems that result from injury. Extensive site lists past and future presentations, introduces the people who are affiliated with the group, and offers an archive of past and current news releases. Also available are details on the center's facilities and their sponsoring institutions (the University of Manitoba, the Health Sciences Centre, and several major Canadian fundraising organizations). Site is comprehensive and attractively designed. Links are available to a number of other websites, many of which are focused on neurological and disability-related issues with a specifically Canadian focus.

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Neurology

Web

5/2/2002

153

Spinal Cord Research Center

2
14

The Spinal Cord Research Center at MCP (Medical College of Pennsylvania) Hahnemann University is home to a number of researchers who study the pathophysiology and various treatment methods available for spinal cord injury (SCI). Meet the research team, learn about the results of past studies and the nature of current studies, browse the long list of articles written by affiliated scientists that have appeared in medical journals, and learn about how the program is funded. A picture of Christopher Reeve visiting the facility appears on the front page. Page is concise.

Neurology

Web

5/2/2002

154

Society for Neuroscience : Brain Briefings

3
15

The "Brain Briefings" produces by the Society of Neuroscience comprise a series of several dozen two-page newsletters that describe how basic scientific discoveries in the field of neurology lead to clinical applications. Topics covered range from "Estrogen's Influence on the Brain" to "Weight Control and Obesity" to "Parkinson's and Dopamine." Each newsletter is clearly and intelligently written (in a prose style that patients can understand), with well-done images accompanying the text. Details on subscribing to the paper edition of "Brain Briefings" are offered; receive twelve issues for 30 dollars a year. Members of the Society may request one issue free of charge. All issues are fully accessible online to both Society members and the general public.

Neurology

Web

5/2/2002

155

spinal cord release

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11

This 1999 press release from the Massachusetts General Hospital (MGH) describes a research advance in which scientists induced the regrowth of spinal cord fibers in adult mammals--a feat believed to represent a significant step forward in the search for a cure for paralysis caused by spinal cord injury (SCI). Text is concise. Quotes from the scientists responsible for this advance are included.

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Neurology

Web

5/2/2002

156

Spinal Cord Injury Rehabilitation Units

1
10

The Shriners Hospitals serve young patients suffering from a variety of ailments. This page describes the services the Shriners make available to spinal cord injury (SCI) survivors. Services are offered at clinics in Chicago, Philadelphia, and Sacramento. It outlines the components of its rehabilitation program, which include recreational therapy, the teaching of self-care skills, research, and general preparation for independent living. Photos complement the text, and links lead to the three individual hospitals that deal with SCI issues.

Neurology

Web

5/2/2002

157

Spinal Cord Injury: Advancement in Recovery and Research

1
11

Don't be turned off by the bareness of this frontpage; click on through to find an online slideshow documenting advances made in the field of spinal cord injury (SCI) research and recovery treatments. Navigate through the slideshow to learn about the make-up of the neuron, the function of glial cells, and the numerous secondary damage events that can occur among SCI survivors after the impact of the initial trauma. Slide images are somewhat small; they are difficult to decipher.

Neurology

Web

5/2/2002

158

Sexuality and Spinal Cord Injury

2
13

This article from American Rehabilitation, a publication of the U.S. Department of Education, discusses the unique sexual concerns of those who have survived a spinal cord injury (SCI). It includes information on changes in the sexual response mechanism--including sexual dysfunction--and discusses the problems of infertility that are associated with certain types of spinal cord injuries. Article is written in comprehensible but scientifically sophisticated prose. It is a good reference to all those looking for help with a concern that is often left unaddressed.

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Neurology

Web

5/2/2002

159

Scientific American: Explorations: Spinal Repair: 8/18/97

1
17

This article from Scientific American magazine describes recent research advances made in the search for ways to repair spinal cord injury. It is fairly concise, briefly describing promising results obtained at the University of Florida and at the Craig Center for Spinal Cord Injury Research. It links to a news release from the University of Florida describing its advance. Prose is written in accessible common language.

Neurology

Web

5/2/2002

160

Rick Hansen Man in Motion Foundation � Supporting Spinal Cord Injury Research for Cure

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681

Rick Hansen, who sustained a paralyzing spinal cord injury at the age of fifteen, heads up bot the Rick Hansen Man in Motion Foundation and the Rick Hansen Institute, both of which support the search for a cure. Hansen was the first disabled student at the University of British Columbia to graduate with a degree in Physical Education, and part of this site's purpose is to document his 40,000-kilometer round-the-world journey he made in his manual wheelchair. In addition, this comprehensive, well-designed site offers press releases, a list of upcoming events, details on the Rick Hansen School Program, and summaries of research programs to which the foundation provides funding. Donation information is available. Rick Hansen also tells his personal story in a motivating and inspirational section of the site. His programs are affiliated with the University of British Columbia.

Neurology

Web

5/2/2002

N/N

161

WEBFILES\SCIREHAB

2
N/A

This paper describes the rehabilitative process required of survivors of spinal cord injuries (SCI). It is thorough, covering all steps involved in rehabilitation, from the needs of the acutely injured to social re-integration and job acquisition. Prose is written in an understandable, patient-friendly tone. References at the end of the article lead readers to other SCI-related resources, including government publications, books, and articles from the scientific literature.

Neurology

Web

5/2/2002

162

Welcome to Magee: Magee Rehabilitation Hospital for Physical Rehab

4
151

The Magee Rehabilitation Hospital, part of the Jefferson Health System of southeastern Pennsylvania, is one of the nation's sixteen federally designated Regional Spinal Cord Injury Centers. It is located in Philadelphia. Site introduces the many services available at the hospital for victims of traumatic brain injury (TBI), spinal cord injury (SCI), stroke, and other debilitating neurological conditions, as well as orthopedic injuries and amputation. It also presents press releases and news excerpts and describes the community programs it offers for folks of all ages and walks of life who are in need of rehabilitative services (programs include art therapy, job training, and peer support networks). Details on fundraising and a collection of health education materials round out the site's offerings. Information can be requested by mail. Site is extensive and smartly designed.

Neurology

Web

5/2/2002

163

Reeve-Irvine Spinal Cord Injury Research Center

3
161

The University of California Irvine is home to the Reeve-Irvine Spinal Cord Injury Research Center, which is named in honor of actor and SCI survivor Christopher Reeve. Site describes why there is reason to hope for a major breakthrough in SCI research soon, eventually leading to the ability to regenerate the spinal cord. It also provides profiles of affiliated faculty, a description of its education and training programs (for graduate students and post-doctoral fellows), and an online newsletter. Details on making a donation to the center are also available. Click on the "Information" link to find basic descriptions of the center's history, mission, and facilities. Site is cleanly designed.

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Neurology

Web

5/2/2002

164

Quest for the Cure

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18

Quest for the Cure is a group of individuals working to improve funding and support for research aimed at restoring lost functions to spinal cord injury (SCI) survivors. Though its last update was made in 2000, site links to a diverse group of resources, many of which remain relevant today--mostly disability-related laws of individual states and other legal and political matters. Site is compact and simply designed.

Neurology

Web

5/2/2002

165

Pediatric Neurosurgery - Tethered Spinal Cord

1
29

Learn about tethered spinal cords--a benign birth defect that can lead to serious consequences if untreated--on this page of the Pediatric Neurosurgery website, a service of the Columbia University Department of Neurosurgery. Brief text describes the nature of the condition and outlines the typical treatment: either surgery (the usual course) or careful observation. Links lead to the rest of the site. Text is short and written in patient-friendly language.

Surgery
Neurology
Pediatrics

Web

5/2/2002

166

Northwest Regional Spinal Cord Injury System/UW Rehabilitation Medicine

3
156

The University of Washington's Department of Rehabilitation Medicine is home to the Northwest Regional Spinal Cord Injury System, one of the nation's sixteen Model Spinal Cord Injury Centers. Its website presents an update on spinal cord injury (SCI) concerns for both healthcare professionals and consumers/patients as well as a schedule of the SCI Forum (a monthly speakers' forum that takes place at the UW Medical Center), a selection of pamphlets addressing common concerns of those undergoing post-SCI rehabilitation, and a list of current research studies happening locally that need volunteer SCI survivor participants. Links to a select number of other SCI resources online are also available. Site is compact and neatly designed.

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Neurology

Web

5/2/2002

167

NeuroControl Corporation

2
103

NeuroControl is a Cleveland-based company that manufactures and markets products that restore neuromuscular function to survivors of stroke. Its website advertises its products, which include the RestoreStIM device (providing relief from pain associated with shoulder subluxation--the separation of the shoulder joint due to stroke-induced muscle weakness) and the Freehand (improving the ability of spinal cord injury victims suffering from tetraplegia to grasp items with their hands). Basic site provides details on these products in English, German, French, Italian, and Spanish.

Neurology

Web

5/1/2002

168

National Spinal Cord Injury Statistical Center

3
24

The University of Alabama at Birmingham is home to the National Spinal Cord Injury Statistical Center, a project begun in 1983 through the acquisition of federal grant funds. It forms the hub of the national network of eighteen federally sponsored regional Model Spinal Cord Injury Care Systems. It is also home to the world's largest database of information related to spinal cord injuries. Details are available on SCI fellowships and training programs, alternative treatments for spinal cord injuries, and current and completed research projects. The center also publishes a guide to the basics about spinal cord injury, called "Spinal Cord Injury Facts and Figures at a Glance."

Neurology

Web

5/1/2002

169

NINDS - Neurological Disorder Information

3
216

On this page, the National Institute of Neurological Disorders and Stroke (NINDS), one of the National Institutes of Health (NIH), catalogs of all its many information pages on a wide array of neurological conditions. Diseases run the gamut from brain aneurysm to hydrocephalus to multiple sclerosis. Each linked page answers basic questions about the condition, lists references to relevant medical and scientific literature, provides contact information for major national organizations working on issues related to the condition, and, if applicable, offers links to other NIH-scribed documents on facets of the disorder. This page also allows users to request printed materials to be delivered by U.S. Mail and presents a special list of those publications that are also available in Spanish. This is a good gateway to authoritative, easy-to-read information on virtually all common and uncommon neurological conditions.

Neurology

Web

5/1/2002

170

National Center for the Dissemination of Disability Research

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1325

Learn about the National Center for the Dissemination of Disability Research (NCDDR) on this site. The NCDDR aims to bridge the information gap by uniting the research activities of all those working on disability issues with the audiences that need access to such information. Its work includes surveys, focus groups, demonstration activities, and the centralization of access to disability knowledge. This mammoth website documents its findings, hosts online surveys, presents news and announcements, describes research results, presents details on assistance projects aimed at helping businesses, government agencies, and others in achieving compliance with the Americans with Disabilities Act (ADA), and much, much more. Site's abundant content will provide plenty of help to those seeking complete, current, reliable information on disability-related issues. A special section guides webmasters through the process of making their sites accessible to those with disabilities. Site is funded by a grant from the National Institute on Disability and Rehabilitation Research (NIDRR) of the National Institutes of Health (NIH), and it is administered by the Southwest Educational Development Laboratory (SEDL).

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Neurology

Web

5/1/2002

171

National Center for Medical Rehabilitation Research (NCMRR)

3
N/A

The National Center for Medical Rehabilitation Research (NCMRR) is a component of the National Institute of Child Health and Human Development (NICHD), which is itself a division of the National Institutes of Health (NIH). This basic but complete site describes the mission of the NCMRR, which is to support research leading to opportunities for those with disabilities to live healthier, happier, and more full lives. Site also lists publications about the center, outlines its seven priority funding areas, catalogs the many grants it has distributed, and lists past and future workshops, conferences, and meetings. A FAQ is also available. Site deals with a lot of nitty-gritty; center appears to be very involved in the distribution of grant funding.

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Neurology

Web

5/1/2002

172

The Model Spinal Cord Injury System at the MCW/FMLH

2
60

The Medical College of Wisconsin and its affiliated Froedtert Memorial Lutheran Hospital have created a model spinal cord injury (SCI) system, which provides integrated, transdisciplinary care to survivors of spinal cord trauma residing in Wisconsin, the upper peninsula of Michigan, and northern Illinois. The facility offers support groups to these survivors and their families, conducts research (both on its own and in collaboration with others), and offers a newsletter and plenty of brochures on managing life with an SCI. Dozens of links are also available. Site is made with patients in mind, especially the research information, which is easy to read and understand. Newsletter has not been updated since 1999. Otherwise, content is fairly thorough.

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Neurology

Web

5/1/2002

173

Mike Utley Foundation -- Finding a Cure for Paralysis

3
73

The Mike Utley Foundation was founded by Detroit Lions' offensive guard Mike Utley, who was paralyzed while participating in an NFL game in 1991. Read his extensive biography (in a resume-like format), check up on current happenings in the foundation's online newsletter (which has not been updated with great regularity), or browse a current calendar of events. Easy-to-read information on the current state of research is also available (under "Research Gameplan"). Design is attractive, but some areas of site are incomplete.

Neurology

Web

5/1/2002

174

Midwest Regional Spinal Cord Injury Care System

3
12

A partnership among Northwestern University, Northwestern Memorial Hospital, and the Rehabilitation Institute of Chicago, the Midwest Regional Spinal Cord Injury Care System has provided integrated acute care and continuing consultation to spinal cord injury victims since 1972. Site explains the integrated care that the system provides to SCI survivors in the midwestern states, describes the "eight steps" of patient care, and presents research results from non-federally funded research happening within the system's clinics. Case studies and details on the new Universal Spine Fracture Classification scheme are also provided. Much information is specific to the services it provides to midwesterners, but plenty of general SCI information is also available.

Neurology

Web

5/1/2002

175

The Lois Pope LIFE Foundation - Leaders In Furthering Education

3
11

The Lois Pope LIFE (Leaders In Furthering Education) Foundation supports twenty doctoral and post-doctoral fellows at the University of Miami Medical School in conducting research into various neurological conditions, such as Alzheimer's disease, Parkinson's disease, stroke, and spinal cord injuries. This is but one of the many endeavors undertaken by the philanthropic organization; click back to the homepage to learn about the fund's other beneficiaries, such as teachers, underprivileged and handicapped children, and Guatemalan villagers in need of clean drinking water.

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Neurology

Web

5/1/2002

176

Rehabilitation Research- Kessler Medical Rehabilitation Research and Education Corporation

3
285

The Henry H. Kessler Foundation funds the Kessler Medical Rehabilitation Research and Education Corporation (KMRREC), which conducts both basic and applied research in the field of physical medicine and rehabilitation. Located in northern New Jersey (in West Orange), the KMRREC focuses its research and services on such conditions as traumatic brain injury (TBI), spinal cord injury (SCI), and stroke. Its programs research issues related to both quality of life and treatment/cure. It also offers a program known as the Objective Structured Clinical Examination, in which physicians-in-training engage with actors and real patients to practice their skills in managing neurological clinics. Website offers details on the organization's many undertakings. News and event information, as well as details related to career matters and professional education, are available. Site design is attractive, and contents are wide-ranging.

Neurology

Web

5/1/2002

177

Department of Neuroscience at the Johns Hopkins University School of Medicine: Welcome

3
29

The Johns Hopkins University School of Medicine introduces its Department of Neuroscience on this site. Find details on the department's graduate program, profiles of people affiliated with the program, and a current calendar of upcoming courses, seminars, and events. The "Resources" link leads to dissertations written by affiliates in past years and to recent course syllabi. Design is attractive, and contents on various neurological themes are accessible a few pages into the site (especially through the "Resources" link).

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Neurology

Web

5/1/2002

178

International Spinal Cord Regeneration Center

2
102

A team of doctors in Tijuana, Mexico, that has had success treating paralyzed victims of spinal cord injury (SCI) with embryonic cell therapy introduces its work on this site. It describes the treatment facility (the International Spinal Cord Regeneration Center), the treatment itself, and the patient results. It also provides information on patient eligibility and program costs. A FAQ is available. There is also reference information for a video and a book produced by the group describing its treatment method.

Neurology

Web

5/1/2002

179

Cure Paralysis Now Home Page

3
432

The mission of the Cure Paralysis Now homepage is to support and report on the many advances made in recent years toward finding a cure for paralysis caused by spinal cord injury (SCI). The pyramid at the top of the homepage depicts the steps necessary to achieve this goal. Click on each level of the pyramid to find detailed information on the make-up of each of the steps. A very extensive FAQ is hosted by this site--said to be the first FAQ on spinal cord injuries available online. News (which has not been updated in a number of years) is also available. Though site design is basic and contents have not been updated regularly, there is still plenty of good basic information on paralysis available here.

Neurology

Web

5/1/2002

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CORD: Collaboration on Repair Discoveries

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CORD--the Collaboration on Repair Discoveries--is an interactive research group committed to finding effective treatments, and eventually a cure, for paralysis caused by spinal cord injury (SCI). It is based at the University of British Columbia in Vancouver. The group's attractive website offers a detailed profile of its mission and history, summaries of the research interests of each of the scientists affiliated with the group, references to publications scribed by group affiliates, and details on funding. A list of trainees working with CORD is also available, as are profiles of the group's leading faculty members.

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5/1/2002

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181

Cleveland FES Center - FES Institute

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Learn about the Cleveland FES (Restoring Function through Electrical Stimulation) Center on this, the facility's plainly designed but very thorough website. The Center aims to restore lost functions to paralyzed individuals; it does this through electrical stimulation research and treatment provided in conjunction with the Cleveland VA Medical Center, the MetroHealth Medical Center, Case Western Reserve University, and other institutions. Site offers a photo collage of the center, an "FES Information Center" offering detailed explanations of the procedure in a variety of formats (FAQs, references to literature, glossaries, etc.), and profiles of the staff and alumni of the center. News releases and listings of projects and publications round out the offerings. Content abounds, and, though the site is mostly text-only, it is arranged in a very easy-to-navigate way.

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5/1/2002

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Christopher Reeve Paralysis Foundation

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Ever since becoming paralyzed in a horseriding injury in 1995, Christopher Reeve, the actor who played Superman, has been a leading advocate for paralysis victims. The Christopher Reeve Paralysis Foundation, which he founded, has given over 22 million dollars to promising research endeavors in just a few years time. The foundation's very extensive website is home to all sorts of information: news and updates on fundraising activities and research advances, biographical information about Christopher Reeve (and personal messages from him), details on the group's "Quality of Life Grants," which support efforts to assist paralyzed individuals in discovering their abilities (not their disabilities), and thorough descriptions of the foundation's different research support mechanisms. The "Living with Spinal Cord Injury" section guides SCI survivors through the challenges--physical, psychological, spiritual--that face them. High-quality content abounds on this easy-to-navigate, attractively designed, and information-dense site.

Neurology

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5/1/2002

183

Center for Paralysis Research (Spinal Cord Injury)

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Affiliated with the School of Veterinary Medicine at Purdue University, the Center for Paralysis Research has developed innovative techniques for treating dogs with naturally occurring cases of spinal cord injury. The Center works to commute these advances to the more than 250,000 North Americans who are paralyzed due to such injuries. Site offers a FAQ for dog owners who would like to register their canine companion in one of the center's research studies, as well as general details on past and current research, an outline of the entry criteria for dogs who may be eligible for the program, news, and photos of recovering dogs in specially designed wheelchairs. The focus is on dogs, with only brief sideglances at human concerns. The site is extensive and neatly arranged.

Neurology

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5/1/2002

184

Canadian & American Spinal Research Organization

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The attractive website of the Canadian and American Spinal Research Organization includes information on both halves of the organization (the Canadian and American, that is), a listing of research projects receiving funding from the organization, and summaries of research advances made by CSRO/ASRO funding (complete with video illustrations). Thorough background information on spinal cord injury (SCI) is offered, topped off with a glossary of SCI-relevant terminology. Details on its several programs--which encourage prevention of SCI among hockey players, enlist professional hockey players as spokespeople, and help re-introduce SCI survivors to the world of work--are also available. It also offers previews (with photos) of its many fundraising events. Site is extensive and well designed. Though organization is for both Canadians and Americans, site has a decidedly Canadian feel to it (but the abundant information is useful for all).

Neurology

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5/1/2002

185

The Bryon Riesch Paralysis Foundation

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By funding promising research endeavors and supporting those affected by spinal cord injury (SCI), the Bryon Riesch Paralysis Foundation hopes to help find a cure for paralysis as soon as possible. The Wisconsin-based organization introduces itself on this site, providing details on its annual "Golf Outing" fundraiser, summaries of the projects that recently received research grants from the foundation, and details on its scholarship program for young people with neurological disabilities. Site is compact and well designed. The "Contact Us" link leads to a roster of the group's officers, and the links page leads to a select number of SCI websites.

Neurology

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5/1/2002

186

Australasian Spinal Research Trust

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The Australasian Spinal Research Trust is a fundraising and research supporting organization working with Australian scientists to develop effective treatments and, ultimately, a cure for paralyzing spinal cord conditions, such as injury. Its site introduces the group and outlines its objectives: promotion and funding of research, encouraging cooperative efforts of all sorts, monitoring research advances, and disseminating news of promising results. The site outlines and references current and recent research being done in Australia and the U.S. and offers a series of pages describing the basics of spinal cord injury (complete with illustrations). Site is fairly compact; all contents are readily understandable by the general public.

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Neurology

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5/1/2002

187

The Miami Project to Cure Paralysis

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The Miami Project to Cure Paralysis is one of the world's leading programs aimed at developing effective treatments--and eventually a cure--for paralysis. It was founded in 1985 by Dr. Barth Green, a leading researcher in the field. The Miami Project does not provide care or treatment, but it does enroll those crippled by paralysis as test subjects in its many experimental treatment programs. Basic details about the program are available on this website, along with background information on spinal cord injury (SCI). The "Research" link leads to one-paragraph summaries of the many research endeavors that the project has undertaken and plans to undertake; it also outlines what the scientists at this center see as the "Five Steps to a Cure." Details are available on the Lois Pope Life Center, a new interdisciplinary facility at the University of Miami Medical School that is devoted to the study of all neurological problems. The link to the Buoniconti Fund to Cure Paralysis provides background information on this effort of a former professional football player whose son became paralyzed following a spinal cord injury; all funds raised by this group are delivered to the Miami Project. The "Library" links leads to a comprehensive archive of the project's newsletters, complete with detailed articles summarizing happenings and events and plenty of photos. The calendar of events lists activities happening in Miami and nationwide, with an emphasis on fundraising activities. Site is thorough and neatly designed. Detailed contact information for each of the project's departments is available for those who would like further information.

Neurology

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4/30/2002

188

Vahid English Home Page

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A young Iranian man named Vahid who became disabled after surviving a spinal cord injury (SCI) tells his story on this site. It has not been updated in a while, but visitors can find a biographical summary, a photo album, links, and a guestbook. Design is a little busy, but the author's upbeat tone is refreshing.

Neurology

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4/30/2002

189

TODDMAN IMAGES

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Learn about a C5 quadriplegic who enjoys digitally editing photographic images. Here he presents information on his work, details on the Free Hand System that was surgically implanted in his hand to give him better control of the muscles allowing him to close his thumb and forefinger, and updates on various activities happening at the Derby High School in Derby, Kansas (his hometown). Information on the Boy Scout troop he advises is also available, as is a section of information describing the adaptations made to his house to make it accessible to his wheelchair.

Neurology

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4/30/2002

190

2TIM.NET

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This page presents biographical information about Tim Syfert, a man living in Mesa, Arizona, who survived a trampoline accident at the age of seventeen but was left a C5 quadriplegic. He offers inspirational advice on having a great day despite all odds and dishes out "food for thought," which consists of aphorisms describing the importance of living every moment fully. There is a link here to the Quad Link website, which is the site author's major online project.

Neurology

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4/30/2002

191

John Williamsons, Sunrise Medical Quickie F55 Powerchair Modifications!

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Paraplegic John Williamson describes the modifications he has made to his Sunrise Medical Quickie F55 Powerchair on this site. Very detailed instructions are complemented by photos of the modified machine. His modifications made the chair much easier to get in and out of, allowed him to pop wheelies, and his future plans call for turning his wheelchair into a 8+MPH speed machine. However, certain companies are refusing to supply him with the parts to complete this modification, as they are worried about his safety; he is quite upset about this, and he names names.

Neurology

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4/30/2002

192

Spinal Cord Injury Testomonies, Stories & Photos

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A young woman who incurred a spinal cord injury (SCI) after being involved in a car accident tells her story briefly on this site. The major function of the site, however, is to collect stories and photos submitted by other SCI survivors, who all share their experiences--often horrific, always moving--with site visitors. Design is basic, and contents are extensive, though site author's story is much shorter than those submitted by visitors.

Neurology

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4/30/2002

193

Spinal Cord Injury/Dysfunction Information Station - Quadriplegics By Gunfire

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Quadriplegics By Gunfire is a resource site for all those affected by spinal cord injury (SCI) or spinal cord dysfunction, especially those who have been paralyzed by gunfire-related incidents. It offers mostly links to other SCI resources, but also makes available bits and pieces of original content: an autobiography of the site author (a Floridian who was paralyzed by gunfire several years ago), details on the various levels of SCI and the dysfunctions that can be expected to correlate with them, photos, poetry and stories, an online quiz, a discussion of the unique care requirements of gunshot wound victims, and more. Site is quite extensive and simply arranged.

Neurology

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4/30/2002

194

Spinal Cord Injury: A Medical, Rehabilitative, and General ApproachSpinal Cord Injury: A Medical, Rehabilitative, and General Approach

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Personal site offers an insider's account of what it's like to live with a spinal cord injury (SCI). Jerry Carter, the site's author, tells his story by way of an excerpt from a book he hopes to publish on the topic. He also offers pictures of himself before and after his accident and plenty of statistics and basic information about SCI. There is also a section for fellow SCI survivors to share their personal stories. Site is quite dense with information and is simply designed. Hit the "Back" link at the bottom of the page for information on Jerry's general interests, including Ozzy Osbourne and other musicians.

Neurology

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4/30/2002

195

The Jerry Haney Home Page

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Jerry Haney, a spinal cord injury (SCI) victim who passed away in 2001, receives a memorial in the form of this website, which is put together by his father. Find information on the trampoline accident that caused Jerry to be paralyzed. Also see photos of the garden Jerry helped to develop (specifically for the enjoyment of disabled, usually house-bound folks), which now serves as a memorial to him. Coverage of the memorial service is also offered, as are listings of Jerry's favorite prayers, personal reflections, basic SCI information, and more. Site is extensive; click on "Table of Contents" link to find pages.

Neurology

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4/30/2002

196

Salamandar's Homepage

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Click on "Mug Shot and Story" at the bottom of this page to learn of the site author, Salamandar, who is a C5 quadriplegic. He was injured in a car accident after a reckless period as a rebellious young man. He tells how his accident occurred and encourages all fellow spinal cord injury (SCI) survivors to turn to Jesus Christ for comfort and support in their times of need. Front page offers links to author's favorite websites.

Neurology

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4/30/2002

197

Shalom and Welcome! A Rose in Dreamland

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A Canadian woman who is both deaf and wheelchair-bound (the former by birth, the latter due to a sports-related spinal cord injury) tells her story on this site. Not one to be limited by her disabilities, she is an avid fan of many hobbies--including stamp collecting and dollhouses--and she is pursuing a PhD in Jewish Law at FEJ Yeshiva. Site is attractive and thorough, though the popularity of her site has made some of her pages inaccessible: she has exceeded the Geocities data transfer limits. Links lead to resources related to Judaism, disability, and stamps.

Neurology

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4/30/2002

198

Ricsport's Home Page

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A Minnesota man who is a spinal cord injury (SCI) survivor advertises an America OnLine chat event on this, his personal site. Contact information and a schedule of when and where the chat takes place are available. Brief biographical details are offered, as are links to the site author's favorite websites (mostly sports-oriented). Site contains only one page.

Neurology

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4/30/2002

199

Reality Check

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Reality Check is the name of a presentation that disabled man Keith LeClaire offers to young people. Keith was injured in an ATV accident when he was seventeen years old. Addressing health education classes or speaking at assemblies during diversity/disability awareness weeks or prom season, Keith emphasizes the importance of always taking safety precautions and demonstrates that the human spirit can emerge victorious no matter what challenges it faces. Compact site offers a preview of his presentation and describes his faith and his love of his family.

Neurology

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4/30/2002

200

Randall Klopping's Techno-Works

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An artist who was disabled by an automobile accident in 1993 briefly tells his story (on the "About the Artist" page) and presents a gallery of his artwork on this compact personal site. His art is of natural scenes, kaleidoscopic and chaotic patterns, portraits, and abstract work. His "4 Your Computer" section offers site visitors downloadable digital art, which can be used as wallpaper or for any other purpose.

Neurology

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4/30/2002

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201

A Positive Light - Christopher Reeve is Still Superman

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This article on the website "A Positive Light," in which writer John Shepler tells inspiring and uplifting stories, describes the heart-rending story of Christopher Reeve, the actor who played Superman who was paralyzed in a horseriding accident in 1995. Short article is followed by a number of references to books and websites detailing Reeve's life and experiences. Links are also available to other articles on Shepler's site, several of which are about disability.

Neurology

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4/30/2002

202

newHemiMan

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HemiMan is the nickname of Joe Enloe, a man whose left side became paralyzed after being involved in a bike accident. He tells his story on this personal site, which also offers a gallery of photos, a profile of his wife, Peggy, and photos of his "RollX" accessible minivan. He also advertises his business, including his image restoration service, which removes blemishes, fold marks, and so on from old photos.

Neurology

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4/29/2002

203

A Positive Light - Hemi-Man

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Article tells of one man's bicycle accident, which resulted in his being hemiplegic--having one side of his body paralyzed due to an injury in the other side of his brain. Article is written in an inspirational style, and the prose is of professional quality. Links lead to similar resources, including the homepage of the man, named Joe Enloe, who is the subject of this article.

Neurology

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4/29/2002

204

A Policeman's Lot in the Greater Manchester Police

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A man named Graham--a police officer in Manchester, England, for twenty years--introduces himself and tells of the spinal cord injury that has left him disabled. It occurred while he and co-officer were attempting to prevent a man from committing suicide, and because this was not a criminal act, the site author has had difficulty securing pension and government benefit funds to pay for his medical care. Extensive autobiographical site tells the story of his police service, his injury, his resulting disability, and his "medical retirement." There is also information on his hobbies (including photography and Web design) as well as a collection of stories culled from his many years of police service, including a heartworming tale of how he adopted a stray dog.

Neurology

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4/29/2002

205

Pmahc's Page

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Pmahc--"Champ" spelled backwards--is the nickname of a man who survived being crushed by a half-built building but was left a quadriplegic with a C5 vertebrae spinal cord injury. He tells his story briefly and follows it with a lengthy list of annotated links, many of which contain one-paragraph summaries of site contents. He also publishes a page devoted to NASCAR driver Ricky Rudd and links to pages on two of his other interests: Ozzy Osbourne and professional wrestling.

Neurology

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4/29/2002

206

Penny's Web Page

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A woman named Penny, who was left paralyzed after being struck by an 18-wheeler on the way to visit family for Christmas, has assembled a few pages on this, her personal site. Contents include several pages describing her family geneaology, a page telling her story, and several links to spinal cord injury resources. Her story is moving, and she includes a plea for folks to support current research on paralysis.

Neurology

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4/29/2002

207

SPINAL CORD INJURY: Picking Up The Pieces

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"Picking Up the Pieces" is the name of this site, put together by spinal cord injury survivor Peter Tan. On it, he tells the story of the swimming pool accident that led to his being paralyzed and describes how he copes with his current disability. Details on the anatomy of his injury are available, as are poems for his mother and his special cyberfriend, Wuan. He also presents a portfolio of his graphic design work and a selection of MIDI music.

Neurology

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4/29/2002

208

Ouch! The Alternative Spinal Rehab Site

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In addition to describing the hobbies and interests of the site author--which include scuba diving, kayaking, and skydiving--and presenting some information on a Web hosting business, this site offers annotated links to plenty of resources across the Internet for folks affected by paralyzing spinal cord injuries. Links lead to sites on many topics, from anti-quackery to nutrition advice to general spinal cord injury (SCI) information and more. Narrative-style updates are made to the main page on a regular basis.

Neurology

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4/29/2002

209

One Split Second

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A freak gun accident stole the use of his legs and arms away from David Carey, a student athlete at Scottsdale Community College in Scottsdale, Arizona, but it didn't steal his spirit. He tells his story on this moving site, which offers photos and news clippings about the event. Details on his motivational speaking services are also available. Site is well designed and thorough. The author's story is horrific but ultimately life-affirming.

Neurology

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4/29/2002

210

Nikos Voulgaropoulos Home

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"Disability Renegade" is the nickname of Nikos Voulgaropoulos, a Greek man who became disabled following an injury caused by a bus accident in 1983. He describes his life, complete with a biography, an online article, and a profile of Disability Now, the Web community he has built for those in the Greek disabled community. Nikos is a prolific author, having scribed hundreds of webpages and articles for online magazines. Site features photos of Nikos and excerpts from his various media endeavors. Majority of contents are in Greek, but there is plenty available in English, as well.

Neurology

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4/29/2002

211

Nicki's Homepage

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A mother of two children, spinal cord injury victim Nicki describes her life after the diving accident that has left her wheelchair-bound. She tells of how she was steadied while in the water, how she was treated in the hospital, and what advances she has made recently. Her detailed text contains words of caution, inspiration, and hope. Several pages of photos are also available. Site is compact.

Neurology

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4/29/2002

212

News from the Edge: J.Michael Kanouff

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A collection of extremely engaging personal essays and accompanying photos are available on this website, a personal page put together by J. Michael Kanouff, who became paralyzed after surviving a spinal cord injury. A resident of Hawaii, he describes his injury and the life changes it has brought about in fifteen very well-written texts. His discussions are frank, thorough, and very human. Design is clean. Letters are available from others living with spinal cord injuries, who write the site author to express their admiration for his work and to share their experiences as para- or quadriplegics. This is an excellent place to learn about the personal experience of disability with an upbeat, motivated tone.

Neurology

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4/29/2002

213

Netta's Home Page

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A young woman in Israel who was paralyzed by transverse myelitis (TM) at the age of fifteen introduces herself on this personal page. She describes how her paralysis developed--"out of the blue"--and presents photos of herself with famous athletes, descriptions of the sports she enjoyed before becoming wheelchair-bound, and showcases her very attractive artwork (which she painted entirely with her mouth!). Photos and maps of Israel are also available, as is a collection of resources about surrealist artist Rene Magritte. Site is well designed; Netta holds a degree in computer science, and it shows.

Neurology

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4/29/2002

214

MICHELLE'S 1st WEBPAGE

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A woman named Michelle living outside of Orlando, Florida, tells the story of her life: her interests as a child and young adult, the spinal cord injury she incurred when diving into a shallow part of the ocean, and her life as a quadriplegic since then. She also offers photos of herself and her toy poodle, Duke, as well as links to a variety of sites, most of which are disability-related. Personal site is simply designed and quite compact.

Neurology

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4/29/2002

215

Music by Jon Weems: recordings of original songs

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Learn about Jon Weems, a musician who currently uses a wheelchair due to a spinal cord injury he incurred after surviving a car accident. This site is focused on his musical creations, with a full selection of songs available for download in Real Audio and MP3 formats; lyric sheets accompany them. Click on "Bio" to find details on how Jon is able to make music with only limited mobility of his hands and fingers. Site is attractively designed, and many of his songs deal with issues related to disability, such as appreciating the present, finding motivation, and realizing that things are not as bad as you think.

Neurology

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4/29/2002

216

Mr. Mans Home Page

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A man who became disabled after experiencing a boogie-boarding injury in Hawaii tells his story on this site. Also featured are a tour of his accessible home, photos of himself with his wife and stepchildren, details on adaptive equipment, a description of his interests (including movies and travel), and photos of an accessible RV that was converted from an old schoolbus. Compact personal site features plenty of photos.

Neurology

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4/29/2002

217

The Mitch Longley Web Page

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Actor and model Mitch Longley, who has used a wheelchair since a serious car accident that he survived when he was a teenager, presents his story and a slew of photos online. The handsome fellow is a vegetarian who volunteers with an organization called Sowoho, which provides support and opportunities to Native Americans with disabilities. His acting and modeling credits include stints on soap operas, work with Polo Ralph Lauren, and talk show appearances. There is also news available about Mitch's latest television appearances, on the CBS show Judging Amy. Site is quite extensive and is attractively designed.

Neurology

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4/29/2002

218

Mick's Place

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Mick, a survivor of a severe spinal cord injury, tells the story of his accident, explains his background and his interests, and offers links to online spinal cord injury resources in the series of pages available on this site. There are photos of Mick in front of Lake Seminole as well as photos of rock bands, boat racing, and other events attended by the site author. Site design is fairly neat; navigate either by clicking the link for the next page at the bottom of each page or by using the pull-down menu.

Neurology

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4/29/2002

219

Melissa Kaar's Personal Page

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Paralyzed by a car accident she experienced in 2000, Melissa Kaar offers this page as a way of thanking the many people who made her recovery possible through treatment, support, and love. It includes a story of her accident told by her mom, a family photo album (showing her with her family when she was in the ICU), descriptions and photos of her two cats, and contact information. Site is compact but full of heart.

Neurology

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4/29/2002

220

Ltlrdhdkd's Home Page

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Todd, a C5 quadriplegic, offers a lengthy list of pages on a variety of topics, from cars to sports to outdoor recreation to motorsports; each contains links to sites of interest across the Web. At the bottom of the page, find links to pages that describe the accident that made Todd a quadriplegic, a page he has put together indexing links to disability resources around the Internet, and a page describing his family's genealogical background. The number of links on this site is quite high, and the author's personal story is detailed.

Neurology

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4/29/2002

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